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Author: All Institute
Here we are, one year later…. Happy Birthday Ideas in ALL!
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Voiced by Anastasia Campbell
Welcome message from the new Editors
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Voiced by Anastasia Campbell
Supported Decision Making and Next of Kin: The DSS Perspective and new perspectives for innovative participatory research
Social Lives
Author: Hannah Casey, Assisting Living & Learning( ALL) Institute Blog editor and PhD Candidate, Decision Support Service
Supported Decision Making is a method that may be employed by persons who require help to make decisions in their day-to-day lives. These decisions may range from, where to go on holiday, to, how to manage financial concerns. Supported Decision Making is gaining traction and importance across the globe, and particularly in an Irish context in anticipation of the Assisted Decision Making (Capacity) Act 2015, set to be commenced in full by mid-2022. This has the added effect of ensuring Ireland may fully honour Article 12 of the United Nations Convention on the Rights of Persons with Disabilities, which states that persons with disabilities have the right to make their own decisions, and enjoy the same legal capacity that people without disabilities have in their lives. The Decision Support Service (DSS) has been established to support persons to exercise their right to make decisions, with the key understanding that a person’s capacity to make decisions should be assessed by reference to the decision in question.
Continue reading “Supported Decision Making and Next of Kin: The DSS Perspective and new perspectives for innovative participatory research”On Function, Restoration, and Recovery
Social Lives
Author: A. Jamie Saris, Associate Professor in the Department of Anthropology and Assisting Living and Learning (ALL) Institute member, Maynooth University
A former student of mine (who has struggled with opiate use and misuse during much of their adult life) recently contacted me for a reference. As I have worked ethnographically with heroin users for many years, and I have written extensively on “addiction” as a concept, I have occasionally been approached by students who have experienced some of the situations that I have written about – from the regulation of time imposed by regular ingestion of a Heroin substitute through the experience of regular use of illegal drugs (especially Heroin) spiralling out of control into increasing risk-taking and subsequent legal jeopardy and health dangers. Thus, over the years, this student and I have had several conversations around their ideas of “addiction” and “recovery” in relation to my work and theorizing.
Continue reading “On Function, Restoration, and Recovery”Autumn School Reflections: Inclusive Methods for a Shared Sustainable Future
Social Lives
Authors: Tadhg E. MacIntyre Assistant Professor, Dept. of Psychology, Maynooth University and scientific coordinator of the H2020 project GoGreenRoutes. Chloe Mooney is a third year BSc. Psychology student and was an intern for GoGreenRoutes this semester. Cassie Murphy MA is second year MU Psychology doctoral student, on a scholarship funded by GoGreenRoutes, supervised by Dr. Elaine Gallagher and Dr. Tadhg MacIntyre.
The Maynooth University green campus with 700-year-old trees provided an authentic backdrop to our GoGreenRoutes project Autumn School concerned with understanding the links between nature and health. Our award winning campus venue (see here for Green Shoots feature) was a highlight for participants who had a tour of the grounds with Stephen Seaman supported by Rachel Freeman (TU Dublin, PhD candidate on GoGreenRoutes).
The wonder of our bucolic campus, recently featured on RTÉ, was not lost upon our new President Eeva Leinonen who noted how nature may be vital for effective leadership too. Our president, a psychologist, quoted as she opened the event, the 44th President of the United States Barack Obama who, in his memoirs had said, how the one-minute open-air commute along the colonnades that bookmarked his day helped him clear his mind and free him from stress. This speech was followed by a superb strategic overview of gender, inclusion and diversity at Maynooth University and beyond, by Vice-President for Equality, Diversity and Inclusion Dr Gemma Irvine, which set the tone for event, with strong gender representation across all the sessions (over 60% Women speakers) and more emphatically, an appreciation for inclusion at every level.
Continue reading “Autumn School Reflections: Inclusive Methods for a Shared Sustainable Future”Here we are, one year later…. Happy Birthday Ideas in ALL!
Symposium
Exactly one year ago, on 3 December 2020, in the midst of the second wave of the Covid-19 pandemic, we launched “Ideas in ALL”: The New Blog of the ALL Institute, as another way in which the Assisting Living and Learning (ALL) Institute seeks to contribute to approaching our most ambitious goal: the creation of a fairer and more inclusive society for all. In 2020, at a difficult and grim time, we felt that it was important to foster a dialogue on empowering people living with a disability or chronic illness, older people, or those marginalized from the benefits of mainstream society.
When we set up Ideas in ALL, we knew that there were several diverse and interesting blogs out there. In fact, it is hard to believe that the term ‘blog’ was coined in the late Nineties and, since then, we have experienced a continued and sustained mushrooming of all sorts of blogs. It may seem as if blogs have reached their saturation point. But no, they have not. Blogs remain one of the best ways to share our ideas, our research, and our curiosities, engage with the general public, contribute to open and transnational thought, in what Baumann has described as a ‘liquid modernity’ and a ‘liquid society’. For us, a blog was and still is the best way to ‘reflect on some old challenges, shed a light on new ones and feel our way in the dark of the unanticipated’.
Continue reading “Here we are, one year later…. Happy Birthday Ideas in ALL!”Welcome message from the new Editors
Symposium
Dear readers of Ideas in All,
As new editors, we are extremely happy to take on this position. We have seen the significant growth of the blog in the past year and its increased popularity. We hope to maintain this momentum while keeping pace with the evolving interdisciplinary research conducted by the Assisting Living and Learning (ALL) Institute.
We thank the outgoing ALL-Blog Editorial Team on the first anniversary of the ‘Ideas in ALL’ Blog for their fantastic work in expanding the blog and soliciting post from an invaluable network of leading experts in the field of disability, public health, law and social policy. As we take up our positions as the second ALL-Blog Editorial Team, we realize that we must strive to maintain the excellent standard and energetic impetus attained by our colleagues during their work on the blog in its embryonic phase. Despite the challenges of founding and growing a professional research blog during a global pandemic, the blog has already expanded to become an influential academic commentary on contemporary physical, social, political, and conceptual dimensions of society in the twenty-first century and resultant levels of accessibility, ableism, ageism, and mobility restriction therein.
Continue reading “Welcome message from the new Editors”Disability and the Media: Representation Matters
Social Lives
Symposium
Author: Dr Emma Smith, Assisting Living and Learning (ALL) Institute Member and Post-Doctoral Researcher; recipient of the prestigious Marie Sklowdowska Curie Actions Individual Fellowship
I distinctly remember the first film I saw specifically related to disability. The film was Murderball, a documentary about the US and Canadian wheelchair rugby teams, their rivalry, and their experience in international competition. What was impactful and memorable about the film was not the focus on disability, it was the opposite. It was the fact that the film focused on team dynamics and personal experiences – things which you’d see in any documentary about any sports team. Of course, disability was relevant to those experiences, but for me, it was the first time I had seen media which was about disability, without being entirely focused on the disability itself. It gave me good perspective – people with disabilities were, first and foremost, people. They spoke openly and honestly about their experiences – they let me into their world for a moment, and contributed significantly to my decision to become an Occupational Therapist – a job which would let me help people with disabilities be people, to do the things which were meaningful to them.
Since then (it’s been a few years), I’ve always noticed those key moments when people with disabilities were represented in the media. For a long time, they were few and far between. Media often portrayed people with disabilities only in relation to their disability, or with stereotyped understanding of disability and not for the rich and full lives they were living. We often saw disability represented in relation to charity – a cause for fundraising. As the conversation shifted, we saw a rise in tokenism, where a person with a disability might be included in a conversation, but often only to fit a quota, or tick a box.
Continue reading “Disability and the Media: Representation Matters”Participation matters – Global Survey on involvement of persons with disabilities in public decision-making
Social Structures
Symposium
Author: Rebecca Daniel – PHD Student, Assisting Living and Learning (ALL) Institute, Department of Psychology, Maynooth University
The IDA Global Survey on political participation of Organisations of Persons with Disabilities (OPDs) was launched earlier this year and will remain open until the end of 2021. It is conducted as part of a PhD research project undertaken at the ALL Institute and discussed below on the occasion of the International Day of Persons with Disabilities.
The human right to participation of persons with disabilities through their representative organisations is clearly stated in the UN Convention on the Rights of Persons with Disabilities (UNCRPD). Articles 4.3 (on participation of OPDs in implementation of the UNCRPD overall) and 33.3 (on participation of OPDs in national implementation and monitoring of the UNCRPD), as well as General Comment No 7 specify this right. As far as the United Nations (UN) are concerned, participation of OPDs is a crucial principle to be considered throughout the activities of the UN, in line with indicator 5 of the United Nations Disability Inclusion Strategy (UNDIS) on consultation of persons with disabilities.
However, as one of the most marginalised groups (compare e.g. WHO World Report on Disability, WHO – Disability and Health and United Nations Office for Disaster Risk Reduction), persons with disabilities are in many ways excluded from public decision-making. Their full and effective participation in all decisions concerning their lives is yet to be realised (compare e.g. Bridging the Gap: The unsteady path, IDA: Increasingly Consulted but Not Yet Participating). Public programmes, policies, plans and projects, insofar as they consider participation, are all too often addressing members of civil society as beneficiaries or consumers of services instead of citizens (Andrea Cornwall).
Continue reading “Participation matters – Global Survey on involvement of persons with disabilities in public decision-making”