Category: Social Lives

Disability and the Media: Representation Matters

Social Lives

Symposium

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Author: Dr Emma Smith, Assisting Living and Learning (ALL) Institute Member and Post-Doctoral Researcher; recipient of the prestigious Marie Sklowdowska Curie Actions Individual Fellowship

Emma Smith Profile Pic
Emma Smith

I distinctly remember the first film I saw specifically related to disability. The film was Murderball, a documentary about the US and Canadian wheelchair rugby teams, their rivalry, and their experience in international competition. What was impactful and memorable about the film was not the focus on disability, it was the opposite. It was the fact that the film focused on team dynamics and personal experiences – things which you’d see in any documentary about any sports team. Of course, disability was relevant to those experiences, but for me, it was the first time I had seen media which was about disability, without being entirely focused on the disability itself. It gave me good perspective – people with disabilities were, first and foremost, people. They spoke openly and honestly about their experiences – they let me into their world for a moment, and contributed significantly to my decision to become an Occupational Therapist – a job which would let me help people with disabilities be people, to do the things which were meaningful to them.

Since then (it’s been a few years), I’ve always noticed those key moments when people with disabilities were represented in the media. For a long time, they were few and far between. Media often portrayed people with disabilities only in relation to their disability, or with stereotyped understanding of disability and not for the rich and full lives they were living. We often saw disability represented in relation to charity – a cause for fundraising. As the conversation shifted, we saw a rise in tokenism, where a person with a disability might be included in a conversation, but often only to fit a quota, or tick a box.

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Understanding emotional barriers to community dementia care services in Ireland: A caregiver perspective

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Author: Linzi Ryan, Assistant Professor in Department of Design Innovation

Image of elderly individual lying in bed close up, face not in shot. Hand being held by what looks to be a carer's hand. 10.2307_community.12138140-1 Linzi Oct Post

Dementia is the greatest global challenge for health and social care in the 21st century with an estimated 47 million individuals diagnosed worldwide, with this number projected to rise to 131.5 million by 2050. The majority of people with dementia live in community settings, supported by family and friends (also known as informal caregivers) who provide care services.  As dementia is a progressive disease characterized by cognitive and functional decline, over time people with dementia become increasingly dependent on support services.  Research has shown that Community Based Services (CBS), which aim to coordinate the treatment and care of people with dementia, can potentially provide a better quality of life for the care receiver, enable them to remain at home for longer, and be more cost effective then residential care.   Despite these benefits of CBS, people with dementia and caregivers use fewer services in comparison to other people in need of care.  While societal, cultural, and logistical factors affecting caregiver use of CBS are frequently studied, research of internal emotional barriers, mental limitations created by one’s own self that prevents open communication of thoughts and feelings, and their effect on CBS use is limited. 

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Promoting Engagement in Sport for Persons with Disabilities Through Assistive Technology

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Authors: Dr. Emma Smith, Postdoctoral Researcher, AT2030, ALL Institute, Department of Psychology, Maynooth University and Ana Geppert, Masters student of Global Health at VU Amsterdam, intern with the ALL Institute at Maynooth University, in partnership with Loughborough University.

Photo by Audi Nissen on Unsplash: ESPN WIde World of Sports Complex, United States Womens wheelchair basketball
Photo by Audi Nissen on Unsplash

In celebration of the launch of the #WeThe15 campaign; the largest ever global human rights campaign to increase awareness and social inclusion of people with disabilities through sport, we would like to share some of our recent research in the area. #WeThe15 is an acknowledgement that at least 15% of the world population – over 1 billion people – live with one or more disabilities, each of whom is entitled to all of the rights and freedoms, and the benefits of social inclusion experienced by people without disabilities worldwide. Of those rights affirmed in the UN Convention on the Rights of Persons with Disabilities, Participation in cultural life, recreation, leisure, and sport (Article 30) is one that we have had a recent focus on in our work.

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Access, not Ability: Why are young women not engaging with STEM (Science Technology Engineering and Maths) and what can we do about it?

Social Lives

Author- Neasa Boyle- Researcher in the ALL (Assisting Living & Learning) Institute, Department of Psychology, Maynooth University.

Picture of ALL Microsoft Interns image shows 6 women smiling at the camera 4 sitting on a blue large armchair and 2 standing with a poster in the background and a white wall.
ALL Microsoft Interns

It has been well documented that STEM learning is the key to societal growth and economic prosperity considering STEM graduates are becoming more sought after, the benefits of effective STEM education may extend past those who wish to pursue STEM careers. STEM prepares students to adapt to any industry, by enhancing in skills problem-solving, adaptability, and creativity. However, despite these clear advantages, female students are significantly less likely to participate in STEM in school or continue these subjects into 3rd level education. This is particularly true for female students from lower socioeconomic areas.

In Ireland, we see girls in DEIS (disadvantaged, or, delivering equality of opportunity in schools) schools are particularly under-represented in STEM. According to an OECD report less than one-third of engineering and one-fifth of computer science undergraduates were female. Additionally, at age fifteen, only 4.7% of female students compared to 18% of their male counterparts showed interest in STEM, even amongst the highest achieving pupils.

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The Loud Silence on Disability and Sexuality; My perspective.

Social Lives

Author: Mohamed Maalim – PhD Researcher, of the ALL Institute, Department of Psychology, Maynooth University

Mohamed Maalim Profile Picture
Mohamed Maalim

11th of July is celebrated as World Population day to highlight global issues on sexual and reproductive health and rights gender equality and the right to family life.  Personally, as a husband and father to five children, am blessed and privileged to be able to exercise this fundamental human right to family life and family unity as enshrined in international and European human rights provisions. Many people, however, including people with disabilities, refugees, and others requiring international protection do not enjoy the right to adequate sexual and reproductive health in particular.

In this piece, I will discuss sexuality issues for people with disabilities from the perspectives of personal understanding and professional practice both as a research student and a registered Occupational Therapist. From an Occupational Therapy point of view, sexuality is considered an activity of daily living (ADL) by the American Association of Occupational Therapists. Occupational therapists may include sexuality as part of a routine evaluation of clients and address this area in occupational therapy interventions.  Sexual activity and intimate social participation are part of meaningful occupational participation contributing to personal satisfaction while sharing intimate relationships may potentially impact one’s wellbeing and quality of life. Sexuality should not be misconstrued to mean only physical intimacy but as a holistic concept encompassing sexual activity, decisions, communication, identity, and choice.

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International Day of Sport for Development and Peace

Author: Ana Geppert, Masters student of Global Health at VU Amsterdam, intern with the ALL Institute at Maynooth University, in partnership with Loughborough University.

Social Lives

Ana Geppert Profile Picture
Ana Geppert

Sport can be a powerful tool contributing to community development. Engagement in Sports has the ability to unify people from the most diverse backgrounds, as well as strengthen the relationship we have with ourselves. In many ways, the practice of engaging in Sport (in the broadest sense of the concept) is like accessing a gateway to so many different levels of society. From our closest surrounding context (micro level) to the highest structures of society (macro level). It can help accessing community services and assistive technologies, which are all crucial to community development. In my discussion today, I am speaking about Sport broadly – not elite-level performance, but rather the every-day sports practices many of us engage in. Encompassing everything from physical activity, to exercise but also recreational play.

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World Autism Awareness Day: Inclusion in the Workplace

Author: Marco Lombardi, Department of Social Educational Care Work and Researcher at Equality Research Collective, Hogent University of Applied Sciences and Arts, Ghent, Belgium.

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Marco Lombardi

Since its establishment in 2007, World Autism Awareness Day has grown up. It began as a celebrative day to facilitate acknowledgment of persons with Autism and the recognitions of supports enable participation in society. A few years have passed and the awareness of persons with Autism Spectrum Disorders (ASD) has increased. The improvement has brought greater visibility, respect and access to treatments.  Guidelines have been developed worldwide and more personalized supports have been tailored and delivered for pupils and teenagers. As the awareness grow up, persons with ASD have grown too. This growing awareness has revealed different barriers to the participation to society, especially for adults, that have not been considered at earlier ages.

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A Feminist Ethic of Care Can Deliver a Post Pandemic Careful Recovery [i]

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Author: Pauline Cullen , Associate Professor Department of Sociology Maynooth University

Pictured Dr Pauline Cullen

“The majority of healthcare workers are women, and both paid and unpaid caring roles mostly fall to women as well. Then there is the additional challenge of increased pressure on the domestic front,” writes campaign group Covid Women’s Voices, a  diverse range of  female healthcare workers, teachers, academics, lawyers and others that observe daily the gendered realities of the pandemic. This group echoes calls from feminist organisations including the National Women’s Council that women’s voices are insufficiently heard during the pandemic.

The facts bear out their lived experience. Ireland ranks 101st in the world for women’s parliamentary representation.   Successive and severe lockdowns have closed schools, childcare and supports for older people and those with disabilities for long periods of time  placing significant burdens on women. Inconceivably, there are  no women on Ireland’s governmental committees on Health and Covid-19.

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Promoting Equal Participation and Eliminating Discrimination: Time to Change the Narrative.

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Author: Mohamed Maalim – PhD Researcher, of the ALL Institute, Department of Psychology, Maynooth University

Blue Butterfly with Brown slate background. Zero Discrimination Day 01 March 2021 wording in top right hand corner

The Zero Discrimination day is celebrated annually on the 1st day of March, to reflect on our rich human diversity and the need for equal opportunity to enjoy fundamental human rights, and to fight against discrimination in all its forms and manifestations. This year, above all previous, the ongoing global COVID-19 Pandemic with all its disruptive nature and the misfortune it has brought and caused, has also offered humanity a glimpse of its ‘non-discrimination’ attribute. The advent of COVID-19 reinforced upon us that we are all equal as humans in our susceptibility, our fear and concern for self and others, and indeed in our hope of getting back to as ‘normal life’ as possible or whatever that ‘normal’ means. 

Additionally, with Covid-19, we have adopted a common enemy enforcing upon us an almost military-type operation to fight back. The nations of the world in an unprecedented fashion formed ‘NATO’ type alliances and collaborative networks with the ‘Big Tech’ and ‘Big Pharma’ in a concerted effort to develop digital contact tracing and tracking apps‘ and vaccines, respectively.  Individual governments assumed the role of commanding officers alongside senior health personnel, frontline healthcare workers, and other so called ‘essential’ workers as the foot soldiers of the operation, while the general public’s hearts and minds were won by calls to stay at home to suppress the virus. 

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Education and Joy

Social Lives

Author: Derek Barter, ALL Institute, Department of Adult and Community Education, Maynooth University

The words ‘Education’ and ‘Joy’ do not sit naturally in the same sentence – at least that is what I have come to find. A few years ago, when our son was about eight or nine years old, I was preparing a PowerPoint slide for a talk on Lifelong Learning and Continuing Education.  He read the slide and looked at me, his eyes brimming with fear and disappointment and said, ‘You mean school goes on forever?’ I reassured him that with luck and time off for good behaviour his sentence could be up in another eight years or so if that is what he wanted.  School and Learning are not the same thing.

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