The Other 73%: Changing our Perspectives when Conducting Dementia Treatment

Social Structures

Author: Sowmya Shrivastava, 3rd year BSc Psychology Student, Maynooth University, Research Intern for Mac MacLachlan at the ALL Institute

Sowmya Shrivastava
Sowmya Shrivastava

There is a growing realization that hospital employees and services must comprehend the complexities of caring for and treating dementia patients. The World Health Organisation (WHO) estimates that dementia rates will double every 20 years, reaching up to 115·4 million people with a diagnosis in 2050. A number of underlying neuropathological symptoms can lead to the diagnosis, which can create problems when trying to differentiate dementia from psychiatric disorders as the disease is found to often mimic them in presentation. Due to this, there is a broad research area in matters concerning the treatments and interventions for patients with dementia. Doctors and researchers have found that the disease modifying antibody drug Lecanemab slowed the decline in memory and mental agility by 27% in patients with mild Alzheimer’s disease but what about the other 73%? What steps can be taken to aid the other, larger part of people living with this degenerative disease?

A unimodal approach has been the most obvious route researchers have taken in order to find a cure for dementia; meaning that only one type of treatment route is used for treating the patient. However there is a downside to this one sided view. By conducting a research review on studies carried out who either took a pharmacological stand or a psychosocial step towards treatments for patients, it was found that both have delivered inadequate results in terms of validity and reliability. The data within research statistically shows that by solely applying a single approach to treating patients, i.e., only psychosocial interventions without administering any drug treatment, the rate of dementia development is slowed, but only at a miniscule level.

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The Psychology of Climate Change: T(h)ree Thoughts on Eco Anxiety

Social Structures

Authors: Dr Tadhg MacIntyre, Assistant Professor, Maynooth University (MU) Department of Psychology, Scientific Coordinator of the H2020 Project GoGreenRoutes, Assisting Living and Learning Institute (ALL), and Dr Annalisa Setti, University College Cork (UCC), Member of GoGreenRoutes’ Advisory Board.

Left to Right profile pictures of Tadhg McIntyre and Annalisa Setti
Tadhg McIntyre and Annalisa Setti

We are the first generation to feel the effect of climate change and the last generation who can do something about it”, Barack Obama, 43rd President of the United States.

In this blog, Dr Tadhg MacIntyre (MU) and Dr Annalisa Setti (UCC) outline some of the known and unknown impacts of climate change on mental health.

1. Known Knowns: Climate Change Solutions

Climate change has consequences for our mental health in both the short-term (e.g. extreme climatic events) and long-term (e.g. existential threat), ranging from trauma to anxiety. How we cope with the challenge of climate change has implications for our ability to generate, engage with and promote solutions. Getting a handle on what some term the climate ‘emergency’ should be seen in the context of how we cope with other interlinked issues – all of which can potentially benefit from our attempts to mitigate climate change impacts. Biodiversity loss, obesity, sedentary behaviour, isolation and nature disconnection are not entirely unrelated from climate change issues.

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Is Social Sustainability the Forgotten Pillar of Sustainable Development?

Social Structures

Symposium

Author: Ruth O’Reilly, Senior Built Environment Design Advisor, Centre for Excellence in Universal Design, National Disability Authority

Here at the Centre for Excellence in Universal Design, we often use this quotation from the designer, Victor Papanek, to explain the focus of our work:

The only important thing about design is how it relates to people

Quotation 'The only important thing about design is how it relates to people' alongside an image of a book with the title Design for the Real Workld, by Victor Papanek.
Figure 1: Quotation from Design for the Real World by Victor Papenek (1971)

A key tenet of Universal Design is that good design works well for everyone. Sometimes however, it seems that social sustainability is the forgotten pillar of sustainable development. How can we persuade designers that taking a Universal Design approach – designing for all people, regardless of their age, size, ability or disability – is a key element of sustainable development?

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Sustainability: What it means and how to practice it.

Social Structures

Symposium

Click for the Audio Version

Author: Cassandra Murphy, PhD researcher in the Psychology Department of Maynooth University, funded by H2020 project GoGreenRoutes, Assisting Living and Learning Institute (ALL)

Cassandra Murphy Profile Picture
Cassandra Murphy

I often talk about sustainability in my work being in the realm of environmental psychology. My research explores the human-nature relationship, which inevitably links to pro-environmental behaviour. People often assume pro-environmental behaviour defines sustainability, but sustainability is much more than recycling and planting trees. Through my conversations I have learnt that the term ‘sustainability’ can be perceived differently. We constantly hear about sustainability, in the news, in our emails, in daily conversations; but what does this term really mean? Everyone’s understanding is individual to their lives and their experience. For some they instantly think of the UN Sustainable Development Goals whereas for others it can simply mean having the ability to keep up momentum of what they do each day and not burn themselves out. An all too familiar experience of many after the recent pandemic.

UN Sustainable Development Goals Logo
UN Sustainable Development Goals logo.

The most common definition of sustainability comes from the UN World Commission on Environment and Development which says sustainable development means “to ensure that it meets the needs of the present without compromising the ability of future generations to meet their own needs.” That’s exactly what it is. Ensuring that throughout our lifetimes we strive to create a world in which we do not take from the generations that come after us, but instead make sure they have what we have, if not better. The future generations should have equal access to the resources we have and be able to benefit from them no matter where they are, or how much money they earn. In a sense, this is the idea that we are leaving no one behind.

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PatentsInHumans ERC Project Commences: PatentsInHumans Explores the Bioethical Implications of Patents on Technologies Related to the Human Body

Social Structures

Author: Professor Aisling McMahon, Principal Investigator (PI), PatentsInHumans

Aisling McMahon profile picture
Aisling McMahon

On the 1st November 2022, the PatentsInHumans project based in the School of Law and Criminology and ALL Institute at Maynooth University commenced. PatentsInHumans is large interdisciplinary five-year project funded by a European Research Council (ERC) Starting Grant. This project was one of 8 projects awarded to PIs based in Irish institutions,  under the ERC Starting grant scheme in 2021.  

This ERC funding will be used to build an interdisciplinary project team and will enable us to explore the core project research questions and aims, which span bioethics, science policy, law, and innovation. This team includes our project manager, Sinéad Masterson, and postdoctoral researcher, Opeyemi Kolawole, both of whom recently joined the team, and who will be joined in future by further postdoctoral and PhD researchers. Together, we will work to tackle the central project research question, which focuses on investigating what are the main bioethical implications posed by patents over ‘technologies’ related to the human body, and how are these bioethical issues accounted for, if at all, within European patent decision-making.

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The Impact of the Welfare State on the Working Lives of Disabled Artists: A New Research Project in ALL

Social Structures

Author: Philip Finn, Assisting Living and Learning (ALL) Institute and Post-Doctoral Researcher; recipient of the Irish Research Council Enterprise Partnership Fellowship.

Philip Finn Profile Picture
Philip Finn

Life as an artist is precarious, even more so for disabled artists. First, disabled people face higher risks of poverty, social exclusion, and discrimination in their working lives and in public services. Secondly, for many in the arts sector income is sporadic, producing an insecurity necessitating on interim reliance on welfare payments to get by. This is felt acutely by disabled artists, often accessing crucial welfare payments and supports, who receive lower incomes from artistic employment, funding and grants. My research focuses on the role of welfare state payments and wider supports in facilitating or impeding disabled artists’ working lives.

The right to participate in the cultural life of the community is enshrined in a number of international documents, for example the Universal Declaration of Human Rights (Article 27) and the International Covenant on Economic Social and Cultural Rights (Article 15(1)(a)). In relation to the specific needs of people with disabilities Article 30 of the UN Convention on the Rights of Persons with Disabilities  requires States to ‘enable persons with disabilities to have the opportunity to develop and utilize their creative, artistic and intellectual potential’. The Convention is central to elaborating a human rights model of disability underlining the recognition and participation of persons with disabilities in communal life. It necessitates accessibility as both consumers of culture as well as creators.

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The Disability Employment Package: A concrete step forward in realising the right to work of persons with disabilities?

Social Structures

Authors: Hannah Casey, Léa Urzel, Matthew McKenna, Ideas In ALL Blog Editors

(L to R) Hannah Casey, Léa Urzel and Matthew McKenna

The European Commission (EC) has now unveiled its Disability Employment Package (DEP). This Package forms part of the Commission’s seven step Strategy for the Rights of Persons with Disabilities 2021-2030. The DEP aims to support Member States in their efforts to ensure people with disabilities have fair and equal access to employment. Currently, just 50% of people with disabilities of working age in the EU are employed, though this number has been rising slowly over recent years

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September 7th, the Publication of the ‘European Care Strategy’: A Brief Appraisal of the European Commission’s Strategic Policy Document

Social Structures

Author: Matthew McKenna, PhD Researcher at Maynooth University’s Assisting Living and Learning Institute (ALL), Research Funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT)

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Matthew McKenna

The highly anticipated publication of the European Commission’s (EC) ‘European Care Strategy’ (ECS/strategy) on the 7th of September 2022 has been met with cautious optimism and circumspection. Certainly, there is a unanimous agreement that the arrival of this strategy is a welcome policy development. However, last week’s unveiling of the ECS also underlined how long overdue this development has been, and it represents an initial and elemental step in addressing the long-term systemic deficiencies in the European Union’s (EU) approach to the care of its citizens. If one is to view this radical collective change as a physical journey, then the ECS is arguably representative of a social and legal point of embarkation from a policy sense, and it is certainly not a final destination.

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What we talk about when we talk about Open Cultural data?

Social Structures

Author: Marta Arisi, is part of the University of Trento team working for the reCreating Europe Project focusing on GLAM.

Marta Arisi Profile Picture
Marta Arisi

Open cultural data can be considered an umbrella term referring to anytime data from Cultural Heritage Institutions (“CHIs”) is made available without restrictions, e.g., thanks to open licensing (as the Creative Commons). It often refers to online resources that contain descriptions, metadata, images, etc. Thus, open cultural data is also relevant to the field of digitization of cultural heritage.

“Open” stands for the possibility to access the content freely, and- to re-use it.  While there is not an accepted definition, useful examples may come from the Open Data Charter or the definition of openness proposed by the Open Knowledge Foundation. Some projects even address the context of CHIs, such as OpenGLAM

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