An undergraduate’s perspective of experience working in academia: ‘SPUR-ring on’ Mental Health

Research Stream: Lived Experience

Author: Isolina Busto Gilligan, BA International Psychology Student, Summer Programme for Undergraduate Research (SPUR) 2024 Intern, Department of Psychology, Maynooth University 

This summer I participated in the Summer Programme for Undergraduate Research (SPUR) in Maynooth University. SPUR is an opportunity for undergraduate students to experience what it’s like to work and research in an academic setting. It takes place over six weeks and students work under the guidance of a researcher in the University while also completing a workbook to further hone their research and professional skills. My SPUR mentor was Dr Sadhbh Byrne of the Psychology Department. The project I worked on with Sadhbh was called PRISM (PRovision of Informal Support for Mental Health). This project, in collaboration with Mental Health Ireland  and funded by Research Ireland is investigating the support given by young people to friends who are going through a tough time. The project was co-designed with an advisory group of young people aged 18-25 with lived experience of providing support to a friend. The project aims to discover the type of support given to friends, the experience of giving this support, and whether supporters perceive any need for support or resources.

Little research has been done on the type of support given by young people to their friends, and their experience with providing the support, so I was very excited to be a part of this project and to help increase knowledge of this important subject and to extend the body of research that is available. I was also excited to be a part of this project because of the co-design aspect, meaning that everything in the project (from the wording of the questions, to the way it was advertised to the public) was designed and decided on by young people with actual lived experience of supporting a friend going through a tough time, making the project more accurate and relevant to the young people it was researching.

My main role in the project was to investigate research dissemination strategies and to look for effective ways of disseminating findings to a young audience. Dissemination involves communicating research findings to target audiences. We wanted the results of the project to reach its main target audience (young people ages 18-25), rather than only reaching academics and experts in the field of mental health (people who mainly read and have access to academic journals). We wanted others to be interested in the results of the project and for the research to have an impact on young people in particular. To reach this goal, I started by doing a literature review on youth dissemination strategies and searched for dissemination case studies. These case studies will be used as examples and ideas, both good and bad, to guide the development of the dissemination strategy the PRISM project will use. I also investigated important considerations for dissemination, and identified relevant frameworks as well as facilitators and barriers to effective dissemination. I then presented my findings to the research team and received feedback and support on my work. Lastly, when I had finished my research, I developed co-design workshop materials based off my findings to be used in a workshop with the advisory group so they can decide on the best dissemination strategy for the PRISM project findings. I also got the unique opportunity to visit Mental Health Ireland’s head office and learn about the work they do there, which was very interesting and a nice change of pace.

As well as working on dissemination strategies and the literature review, I assisted with participant recruitment. Participant recruitment is a vital part of research, but few people get to learn how it works before doing it themselves in their own projects. I now have a clearer idea of the amount of work involved in participant recruitment, which is something people might overlook when planning a research project to begin with. I also learned about other aspects of research such as ethics and funding thanks to my mentor Sadhbh who explained these to me and gave me guidance throughout the project. I feel I improved not just my research skills, but also my professional skills and my ability to work as part of a team and build professional relationships, which is something that is important in any job. I enjoyed this experience and the opportunity to do something different. I enjoyed working on the co-design materials and presenting my findings after doing all the work and putting in so much effort. My findings were presented in a research poster in the SPUR symposium which took place in October. I especially enjoyed creating and designing the poster as I got to use my own creative flair while also putting my research findings to the test by using some of the effective dissemination strategies that I had found.

This internship not only helped me to improve on my professional and research skills but also gave me a great insight into academia and the ins and outs of running a research project. I gained a great understanding through this work and had the rare opportunity (for undergraduates) to peek behind the curtain of what lecturers and tutors do day-to-day when they’re not teaching us students!

Endometriosis – A Hidden Disability

Author: Cassandra Murphy – PhD Researcher in the Department of Psychology and IdeasInALL editor.

Research Stream: Lived Experience

Yellow Ribbon on grey background with text stating March is Endometriosis Awareness Month

March is a month for shining a light on women’s health  For many, this is a time of activism, and a time to push forward the basic needs of those in chronic pain. March is Endometriosis Awareness Month.

Endometriosis is a chronic condition that statistically affects 1 in 10 individuals with female reproductive organs worldwide. This condition often involves debilitating pain for those who suffer, leaving them missing out on school, work and social activity. To put this condition into context, 1 in 10 people worldwide are diagnosed with diabetes. Now, consider the fact that endometriosis  only affects half of the population, that figure is striking. More striking again is the fact that in Australia, a country well known in the endometriosis community for its pioneering research and proactive attitude to endometriosis, it is believed this figure is actually 1 in 7. Why might this figure be so different across countries? The answer is because of ‘access to diagnosis’.

On average it is believed to take up to 11 years to get a diagnosis in Ireland for endometriosis. This is not an Ireland-only issue – this is a worldwide delay. One of  the reasons behind this is the fact that the symptoms can be quite similar to other conditions. As per the Endometriosis Association of Ireland’s website, the common symptoms are: Painful Menstruation, Pelvic Pain (that radiates down the legs or up the back), Painful Intercourse, Bowel Problems, Fatigue, Premenstrual Syndrome, Abnormal Menstrual Bleeding, Painful Urination and Infertility. However, these are only the common symptoms. This is quite an individualistic and full body disease which has even been linked to immune-dysfunction.

Endometriosis is characterised by endometrial-like cells (similar to the cells that make up the lining of the uterus/womb) growing in other parts of the body. These cells can cause inflammation, leading to the extreme levels of pain individuals suffer. Up until 2022, it was believed that endometriosis has the potential to be found on any organ, except for the spleen. While most common in or around the reproductive organs (ovaries, uterus, rectum, bladder) it has been found as far away as the brain. However during the laparoscopic surgery of a young woman, and in the subsequent pathology report, endometriosis was discovered in a splenic cyst. Based on the location of the cells the symptoms may not be in the GPs list of ‘typical’ symptoms to look out for. Symptoms include brain fog, nerve pain, shortness of breath, lymph node swelling (similar to lymphoedema), shortness of breath and even mental health conditions to name a few. It is no shock that doctors are struggling to identify it in consultations, as they may be looking for the wrong thing. However, even when patients identify with text-book symptoms, they are getting dismissed as it is “just a bad period pain,” but clearly, it is so much more than that.

If you find yourself asking “if the pain is that bad, why is it not classified as a disability?” you are not alone! It is shown that up to 88% of individuals report a disruption to some element of their life (social, academic or work), leading them to miss out on daily activities due to symptoms of endometriosis. This is a conversation that was raised for the Oireachtas in 2021 by Deputy Clair Kerrane, and again just last month by Deputy Marie Sherlock. The issue is that a diagnosis of endometriosis does not automatically mean that your life is interrupted or that it interferes with your daily activities. For many, the endometrial-like cells can lay dormant and do not interfere with life until the individual is trying to conceive. Anywhere between 25% and 50% of infertility cases involve endometriosis. For many of those people, they do not find out until tests are run to screen for infertility. However, consideration needs to be taken for those who are suffering daily, misdiagnosed with Irritable Bowel Syndrome, Fibromyalgia or ‘painful periods’, and spend 11 years or more being told that the pain is in their head.

Maynooth University at large is at the forefront of research on the topic, with researchers in different Schools and Departments engaging with how best support of people experiencing this chronic illness. Research on endometriosis also speaks to the ALL Institute ethos and aligns closely with the mission of the ALL Institute where we are dedicated to interdisciplinary research that improves the lived experiences of individuals with disabilities and chronic illnesses, advocating for policies and innovations that enhance accessibility and quality of life.

Currently, endometriosis does not have a known cause or a cure. However, there is now a large body of passionate individuals who are working to explore a cure, or at least some urgently needed relief measures, for endometriosis. This March, talk to your loved ones about endometriosis. Endometriosis UK shared that “33% of women do not know what endometriosis is and 45% cannot name any of its symptoms and 74% of men do not know what endometriosis is.” Now that you have read this blog, you can change that. Support those with ‘painful periods’ and let us stop normalising women’s pain.  

‘Lived Fiction’ Goes on Stage: Reflecting on a Major Milestone for the DANCING Project and the Collaboration with Stopgap 

Research Stream: Stories / Lived Experiences 

Author: Eva Krolla Research Assistant DANCING, in dialogue with Professor Delia Ferri and Lucy Glover, Executive Producer at Stopgap Dance Company 

Image on the left shows Eva Krolla smiling and wearing white, image in the centre shows Professor Delia Ferri smiling and wearing black, image on the right shows Lucy Glover smiling and wearing navy.

On 11th April, the contemporary dance piece ‘Lived Fiction’ premiered at Dublin’s Lir Academy Theatre in collaboration with Project Arts Centre (PAC). The piece was commissioned by DANCING, a European Research Council (ERC) funded academic research project based at the School of Law and Criminology of Maynooth University. It was created by Stopgap Dance Company’s Deaf, Disabled, neurodivergent and non-disabled creatives under the lead of co-artistic director Lucy Bennett. Stopgap are a global leader of disability access in dance and are based in the UK. ‘Lived Fiction’ artistically embeds accessibility for dancers and audiences through an integrated creative access approach. 

Continue reading “‘Lived Fiction’ Goes on Stage: Reflecting on a Major Milestone for the DANCING Project and the Collaboration with Stopgap “

Reflecting on a Journey of Meaningful Impact: Celebrating with the ALL-Institute

Author: Mohamed Maalim – PhD Researcher at the ALL Institute, Department of Psychology, Maynooth University, and Senior Occupational Therapist and Project Lead, Digital Assistive Technology at Stewartscare

Research Stream: Lived Experience

A pivotal milestone in the calendar approaches as we come to the end of November. An occasion meriting grand celebration – the ALL Institute marks its sixth anniversary, a landmark that coincides with the 3rd anniversary of its stirring initiative, the ‘Ideas in All’ Blog. As a former editorial team member, I was asked to reflect upon my association with the institute and share insights into my enduring journey with the ALL Institute and the ‘Ideas in All’ Blog.

I joined the ALL Institute, drawn in by its ethos of ensuring that everyone, regardless of their circumstances, has the support and opportunity to participate fully throughout their lives. This ethos was further embodied through the blog, focusing on inclusivity, accessibility, diversity, and participation.

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Moving Forward to Have a More Inclusive Society

Author: James Cawley, Maynooth University Alumnus, Business Development Executive at the Irish Centre for Diversity, Disability Rights Activist, and Member of the Irish Human Rights and Equality Commission Disability Advisory Committee

Research Stream: Lived Experience

First, I want to extend my sincere congratulations to the ALL Institute team in marking the sixth anniversary of the ALL Institute at Maynooth University. Equally, I am delighted to contribute to the end of year symposium for the third anniversary of the Ideas in ALL Blog.

My name is James Cawley, I have contributed to the ALL Blog over the last 3 years. For me, the Blog remains an important channel to showcase empowerment and tackle social exclusion.

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Building a Digitally Wealthy society with the support of the ALL Institute

Author: Dr Holly Foley, PhD, Project Manager at the Digital Wealth Project, UDL Digital Badge Lead Maynooth University

Research Stream: Lived Experience

Digital Wealth: An Overview

As we pass the sixth anniversary of the ALL institute it’s a perfect time to reflect on how our research has grown and developed under the ethos of the institute. The Digital Wealth Project commenced in March of 2021 for a 3-year project and funded through Rethink Ireland and Microsoft Ireland led by Dr Katriona O’Sullivan and Dr Holly Foley.

The aim of the Digital Wealth Project is to tackle Digital Poverty.  Digital Poverty is not income-dependent, instead it relates specifically to being able to access the digital resources (materials, skills, training, infrastructure) necessary to enjoy a basic standard of living.

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A Monumental Week for the STEM Passport for Inclusion


Authors: Linda Mc Donald and Jamie Moore are 3rd year BSc Psychology Students, Research Interns for Dr Katriona O’Sullivan, and the STEM Passport for Inclusion Project, at the ALL Institute in Maynooth University

Research Stream: Stories/ Lived Experiences

This week marked a monumental one for us here in the STEM Passport for Inclusion project. Our programme is a project within the ALL institute here in Maynooth University. It provides socio-economically disadvantaged young girls in Ireland an opportunity to learn about STEM, one that is not easily accessible to them usually. This week both the Women in STEM awards and graduation ceremony for our girls who took part in the programme took place, highlighting and celebrating the need for a focus to expand knowledge and opportunities for education and involvement in STEM.

The Women in STEM awards in association with PEPSICO took place on Thursday, which recognises and rewards the accomplishments and efforts of women in the sectors of science, technology, engineering and mathematics (STEM). These women strive to improve and innovate their respective fields of work. It is important that their efforts are recognised and encouraged, to promote inclusion in the field of STEM. In addition, the awards bring attention to the need for more women in STEM, an ongoing and prevalent issue  in today’s society. The Women in STEM Awards are judged by several women who have reached these top-level jobs and remained in them, against the odds. Two members of the impressive judging panel included Gillian Harford and Susan Treacy. Gillian Harford is a senior HR Executive who works with organisations aiming to target diversity and workplace change. While working as a Head of HR Strategy & Planning for AIB, Gillian contributed to people change with respect to Culture, Career, and Diversity. Susan Treacy is the CEO of HealthTech Ireland, and is a member of the Women in Technology and Science (WITS) Ireland Executive. This organisation helps to support and empower women in STEM, and advance STEM policy at government level. These influential women have themselves improved and innovated their respective fields of work and are hence qualified to judge the efforts of others.

 

Dr Katriona O Sullivan

The STEM Passport for Inclusion programme, working with Maynooth University and partners, was nominated for the award for Diversity & Inclusion Initiative of the Year. The feelings of excitement and anticipation as we waited for the winner of the award to be announced, could be felt by everyone in the room. To our delight, the STEM Passport was awarded the honour, an accomplishment that recognises our hard work and effort. Though the STEM Passport for Inclusion won the award for best Diversity & Inclusion Initiative of the Year, the fellow nominees of the category deserve equal recognition for their efforts to improve and innovate the field of STEM. Whilst it appears as though the organisations were in competition for the award, they were in fact working towards a common goal – to improve diversity and inclusion in the field of STEM.  

There was no time to rest following the awards ceremony, as the following day was our graduation ceremony for over 400 girls who had taken part in our programme. Dr. Katriona O’Sullivan, who leads the STEM Passport for Inclusion programme, kicked off the graduation ceremony by introducing the project and congratulating all those receiving their level-6 accreditations. She then introduced the president of Maynooth University, Prof. Eeva Leinonen, who is actively involved in national and international higher education policy discourse and implementation, who briefly spoke about the initiative and its impact and congratulated all the girls for completing the module. After speaking, both Prof. Leinonen and Dr O’Sullivan, helped by Dr Gemma Irvine, Vice President for Equality and Diversity in Maynooth University, began to hand out the certificates to the girls who had completed the module. The girls each went up and received their well-deserved accreditation, thus graduating from the programme – a monumental moment for all parties involved.

Awards Ceremony President of Maynooth University, Prof. Eeva Leinonen, Dr Gemma Irvine, Dr Katriona O'Sullivan and Dr Holly Foley take to the stage to present students with their certificates of completion
Ava Kenny, a former STEM Passport student speaking on her experiences as a student in the programme

Once the graduates had received their certificates, Ava Kenny, a former student of the programme, was welcomed to the stage to talk about her experience with the programme and the pathways it opened for herself. Ava, who is currently studying a science degree in Maynooth University, gave an emotional reflection on what the STEM Passport means to her, stating the programme was “a journey of self-discovery, of finding my passion and purpose. It sent me on a path where I could dream big, aim high, knowing that the STEM Passport welcomed me with open arms”. Ava beautifully captured the transformative and significant impact the initiative had on her life, surely inspiring all the graduates in the room, offering them a glimpse into the future possibilities their newly acquired accreditation can offer.

After Ava’s reflection, Dr Kevin Marshall, the newly appointed Adjunct Professor at Maynooth University’s ALL Institute, joined the stage to say a few words. He highlighted the graduates’ achievement, “to get the university qualification while you’re at school is just amazing”, offering his admiration and support for all the girls. He then passed the mic over to Katriona to close out the graduation ceremony. Once the ceremony was over, everyone headed over for pizza and refreshments, a well-deserved treat for both our girls and team members.  

Dr Kevin Marshall joins the stage to congratulate the students on their journey and success

For our focus on accessibility to STEM education and inclusion within the field to be recognised by such a prestigious award is an honour. Furthermore, for it to be followed by the graduation ceremony, which allows us to reflect and recognise those efforts first hand, to be in the same week, has been nothing short of fantastic. These inspiring young girls, now adorned with their accreditations, now take one step further into the world of STEM. Both ceremonies recognise the work put in to pave the way for a more diverse and inclusive future in STEM – from both the team of today and the future women in STEM who took part in our programme.


Tuesday May 30th: World MS Day

Lived Experiences

Author Bio: Dr Rebecca Maguire is an Associate Professor in the Department of Psychology at Maynooth University. Her research interests include health and wellbeing in chronic illness, caregiver burden, health-related expectations, qualify of life and psycho-oncology. In addition, Rebecca has been living with multiple sclerosis for a number of years, which has influenced her research agenda. She is also a board member of MS Ireland.

Dr Rebecca Maguire profile picture
Dr Rebecca Maguire

Tuesday 30th May marks World MS Day – an occasion celebrated by the global MS community with the aim of raising awareness of the condition known as multiple sclerosis (MS). In Ireland, it is estimated that approximately 9,000 people live with MS, however this number could be higher, with one study suggesting that around 300 people are diagnosed in the country every year. Internationally, almost three million people live with the condition, with rates twice as high in women than in men.

Simply put, MS is a chronic, often progressive, neurological condition in which the body’s immune system attacks the central nervous system, resulting in damage to myelin, thereby disrupting signals to and from the brain (see definition from the US National MS Society). Anecdotally, almost all people will have heard of MS, with many having a family member, friend or colleague living with the condition. However, few people will truly understand what MS is, unless, of course, they live with it themselves. To a certain extent I am privileged in this respect, having lived with MS for a number of years now, although my experience has also made me very aware that no two people with MS are the same. The disease can have wide-ranging, fluctuating and variable impacts for those affected, potentially leading to high levels of disability for some, while having minimal effects on the lives of others. Similarly, although some people with MS may require the support of caregivers, many others continue to live independently, holding down demanding jobs, juggling caring responsibilities and whatever else live entails. However, for almost all affected, MS and its management brings additional physical and psychological burdens which can, at times, be difficult to navigate.

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Maynooth Alumnus and Disability Activist Selected to Represent Disabled People in the European Parliament

Stories/Lived Experience

Author: James Cawley, Business Development Executive at the Irish Centre for Diversity, Disability Rights Activist, and Member of the Irish Human Rights and Equality Commission Disability Advisory Committee

James Cawley profile picture
James Cawley

James Cawley is a disabled activist from County Longford and an alumnus of Maynooth University who is currently working as a Business Development Executive at the Irish Centre for Diversity. He is also a member of the Irish Human Rights and Equality Commission (IHREC) Disability Advisory Committee (DAC) and has worked in numerous capacities and functions in the areas of education and disability rights advocacy. He has represented persons with disabilities in public and governmental fora, having recently served on the Irish Government’s Disability Stakeholder Group (DSG 6) in 2022 after his appointment to the group by the incumbent Minister of State for Disability, Anne Rabbitte.

The function of the DSG 6 is to play an important role in the ‘monitoring of the government’s disability policies and strategies’ and it comprises a membership representative of a diverse group of people from the disabled community.

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My First St. Patrick’s Day in Ireland, a Sharp Reminder of Moments Past Lived

Stories/Lived Experience

Author: Harry Chikasamba, PhD Researcher, Assisting Living and Learning (ALL) Institute, School of Law and Criminology, Maynooth University

Harry Chikasamba
Harry Chikasamba

Every experience is different. And my late grandpa told me, when I was a few days to my 20th birthday, that ‘…in experience, we learn more about ourselves and others. You should be an ardent learner of life, through lived experiences.’ With that in mind, I became a learner of life. And everything fun, and beautiful.

17th March 2023 brought about its own lessons, unique and memorable. Most importantly, the day took me down memory lane. For the Irish, and several others, one needs no sermon about this day. No! St. Patrick is well-known across cultures and races. He was, and remains, a core part of the Irish culture – and identity.

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