Protecting and Promoting Legal Capacity of Persons with Disabilities: Disentangling the Relationship between the CRPD and International Private Law in the Italian Legal System

Social Structures

Author: Francesca Albi, J.D. Candidate – Università degli Studi di Verona (Italy)

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Francesca Albi

Persons with disabilities represent human diversity and their inherent dignity must be recognised. In legal terms, the protection of human dignity is linked to the recognition and respect of the right to legal capacity, which is established by Article 12 of the UN Convention on the Rights of Persons with Disabilities (CRPD). According to this provision, persons with disabilities have the right to legally act on an equal basis with others. Even though they may need support and reasonable accommodations, disability cannot be used to justify the denial of the right of persons with disabilities to make their own choices concerning their lives. To this aim, supported (and not substituted) decision-making mechanisms must be provided to help them in decision-making processes.

Since international mobility of adults (including those with disabilities) is an increasing phenomenon in the contemporary globalized world, international human rights instruments acquire special relevance regarding the exercise of civil rights in transnational situations. In that connection private international law, which has been defined as ‘the body of conventions, model laws, national laws, legal guides, and other documents and instruments that regulate private relationships across national borders’, must be read in conjunction with international human rights norms. To this end, legal scholars (Franzina, 2012; Franzina, 2015; Franzina and Long, 2016, 106-177; Franzina, 2019; Long, 2013) who investigate the transnational protection of the rights of adults with disabilities speak of “integral approach” to identify the mutual influence of international human rights and private international law.

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Day of the Seafarer

Social Structures

Author: Joanne McVeigh, Lecturer at the Department of Psychology and the ALL (Assisting Living & Learning) Institute, Maynooth University

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Joanne McVeigh

June 25th marks the Day of the Seafarer, an international campaign aiming to increase governments’ support for seafarers during the pandemic, but to also more broadly ensure fair treatment and equitable employment conditions for seafarers. We often fail to appreciate our reliance on the world’s 1,647,500 merchant seafarers for the effective functioning of the global economy. However, international trade is underpinned by maritime transport, whereby approximately 80% of the volume of global trade and 70% of the value of global trade are transported by sea. In the book Ninety Percent of Everything: Inside Shipping, the Invisible Industry that Puts Clothes on Your Back, Gas in Your Car, and Food on Your Plate, British author Rose George questioned: “Who looks behind a television now and sees the ship that brought it? Who cares about the men who steered your breakfast cereal through winter storms? How ironic that the more ships have grown in size and consequence, the less space they take up in our imagination” (p. 2). Indeed, the importance of merchant shipping was brought into sharp focus by a container ship obstructing the Suez Canal in Egypt, through which more than 50 ships pass daily, constituting approximately 12% of world trade.

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15th June 2021, United Nations World Elder Abuse Awareness Day, Fostering Accessible Assistive Technology for Older Persons with Disabilities

Social Structures

Author: Matthew McKenna, PhD Researcher at Maynooth University’s Assisting Living and Learning Institute (ALL Institute)

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Matthew McKenna

The World Health Organisation (WHO) Department of Data and Analytics published a technical report in December of 2020 yielding data which highlights the need for increased global awareness of the importance of healthy ageing in the twenty-first century. The report found that global life expectancy increased by more than six years between 2000 and 2019; from 66.8 years in 2000 to 73.4 years in 2019. However, it was found that increased life expectancy did not entail a corresponding reduction in the number of years lived with a disability among older persons. In addition, the United Nations (UN) Department of Economic and Social Affairs estimates a 56 percent global increase, from 901 million to 1.4 billion, in the number of people aged 60 years or over in the 2015-2030 timeframe; this figure is predicted to rise to almost 2.1 billion by 2050 based on current data.

Human society must adapt to support and engage with older persons so that nobody is left behind in an older society. In that regard, the promotion of active, healthy, engaged and independent living for older persons above the age of 65 is key.

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ALL Institute and the new HSE Digital Health Transformation Masters.

Social Structures

Authors: David Prendergast: Professor in the Department of Anthropology, Trevor Vaugh: PI at Mi:Lab, The Maynooth Innovation Lab and Assistant Professor in Department of Design Innovation, Linzi Ryan: Assistant Professor in Department of Design Innovation, Mac Maclachlan: Professor of Psychology and Social Inclusion, and Co-director of the ALL Institute

Image of a monitor in a casula office space - screen shows image of elderly persons hands resting on a walking stick on the top half white background on the bottom half. Text Reads CS6024 Digital Health and Wellbeing in the community. MSc in Digital Health Transformation. Underneath text reads: Trevor Vaugh & Linzi Ryan, David Prendergast & Mac MacLachlan, MAynooth University Dept of Design Innovation, Anthropology & Psychology. ALL Institute (Assisting Living and Learning). Logos on Bottom Left Hand Side of the Screen: HSE University of Limerick, Maynooth University, ALL Institute.
CS6024 Digital Health and Wellbeing in the community.
MSc in Digital Health Transformation.

On Wednesday 4th September 2019, the inaugural Health Service Executive ‘Digital Academy Forum’ was held at Dr Steeven’s Hospital in Dublin. During this meeting, Dr Colm Henry, Chief Clinical Officer for the HSE announced plans for an ambitious and experimental Masters in Digital Health Transformation to help build digital skills and train future leaders in health service innovation. Co-designed between the HSE and several Irish Universities, including Maynooth, Limerick, UCD, DCU NUI Galway and University College Cork, the new degree runs over 18 months and is open to HSE employees and the General Public.

In the first semester of the degree, students completed five modules on topics ranging from eHealth Systems and Standards, Health Information Modelling and Governance, Research Methods and Digital Health Service Transformation. In the second semester, topics such as Digital Health Change Management, Clinical Decision-Making, Data Science and AI in Healthcare were covered, along with a design innovation module on Digital Health and Wellbeing in the Community run by the Assisting Living and Learning (ALL) Institute at Maynooth University. Building on these modules, students were expected to work on a substantial project designing, developing and deploying a digital solution within the Irish Healthcare system.

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Celebrating the World Day for Cultural Diversity for Dialogue and Development: A Contribution from the ReCreating Europe Project at Maynooth University

Social Structures

Author: Dr Laura Serra. Postdoctoral researcher ReCreating Europe, ALL Institute – Department of Law, Maynooth University

Laura Serra - Profile Picture
Laura Serra Profile Picture

Today, 21st of May is the World Day for Cultural Diversity for Dialogue and Development. This is a date that we would like to mark within the remit of the ReCreating Europe project, funded by the European Union Horizon 2020 Programme, by raising awareness about cultural diversity. We also wish to take this opportunity to highlight how the project aims to contribute to foster cultural diversity.

According to the UNESCO Convention on the Protection and Promotion of the Diversity of Cultural Expressions, which was adopted in 2005 and swiftly ratified by several States around the globe, cultural diversity “refers to the manifold ways in which the cultures of groups and societies find expression”, and “these expressions are passed on within and among groups and societies”. Furthermore, cultural diversity “is made manifest not only through the varied ways in which the cultural heritage of humanity is expressed, augmented and transmitted through the variety of cultural expressions, but also through diverse modes of artistic creation, production, dissemination, distribution and enjoyment, whatever the means and technologies used”.

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My Placement Experience with ALL Institute

Stories/Lived Experience

Author:  Kimberly Wright, Postgraduate LLM student Global Legal Studies

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Kimberly Wright

One of the main reasons I decided to pursue a Master’s Degree in Global Legal Studies after completing my Bachelor’s in Law was to obtain a better understanding of the global legal system in the hopes of one day working for an international organization, as well as to apply for a placement to gain practical experience in a reputable organization. From February to May of this year, I had the privilege of interning with Assisting Living and Learning (ALL) Institute.

My first day with the ALL Institute I was incredibly nervous as I had no previous experience working in this field and it was completely different from what I was accustomed to. However, upon meeting the co-directors and their administrative lead for the first time, I was warmly welcomed and immediately put at ease.

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Social robots in real-life environments

Social Technologies

Authors: Negin M Harandi– PhD student, Department of Sociology, Maynooth University. Funded by ADVANCE CRT (SFI), Fatima Ayoub – PhD student, Department of Electronic Engineering, Maynooth University. Funded by ADVANCE CRT (SFI)

Pictured Mylo Robot
Pictured Mylo Robot – CR Robotics/Mylo

Can robots be social? Can we start to think of them as our co-workers, companions, teachers, or caregivers? Would they make our lives easier or is there a robot-dominated dystopian future already awaiting us? These are some of the questions that might pop into anyone’s head when hearing about social robots. Thinking about how AI could be more social is always interesting. We are an extremely social species and often like to imagine what happens when something other than a human is able to act like a human.

On 19 April 2021, the ALL institute hosted a seminar on “Social robots: the ultimate test for AI and robotics”.  Professor Tony Belpaeme (Ghent University) introduced by Dr Rudi Villing (Maynooth University), took us through a few experiments with social robots in different social settings and we got the chance to see how social robots were performing as teaching assistants, therapy assistants and caregivers.

This was especially interesting to us as our PhD projects are about robots. Although we have different ways of studying and looking at social robots as a sociology student and an electronic engineering student, being able to see some of the shortcomings and challenges of using social robots in real social environments was fascinating for both of us.

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Nothing About Us Without Us – Reflections on the European Day for Independent Living

Stories/Lived Experience

Author: James Cawley, Policy Officer, Independent Living Movement Ireland

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James Cawley

First of all, a big thank you to the “ALL Blog” for asking me to contribute! When doing some reflections on the European Day for Independent Living I was thinking about what I would write. I’m writing this blog as a very proud Irish Disabled man who is a son, brother, husband, friend and co – worker. Quite often I’m asked to speak about Independent Living, so this particular piece is coming from my personal and professional lived experience. I attended mainstream education in primary and secondary and entered Maynooth University through the DARE scheme where I completed a BA in Business and Geography, a Professional Masters in Education and then a Certificate in Transformative education with the Turn To Teaching project there within the University. I’m delighted to write this blog as I’m a very proud “Maynooth Access Office” alumni – Rose Ryan and her team are legends in my book!! Of course, being from a big family and being the youngest of 9 siblings from rural County Longford I did everything I wanted from festivals to shark cage diving to ending up marrying my beautiful wife Ally and settling back in rural Longford.

I worked hard in college (and loved to party) and got to pursue my passion for teaching and then wanted to hone my activism skills and bring other people along with me as a collective. When the opportunity came up in Independent Living Movement Ireland (ILMI) I jumped at it and now work as policy officer for the National Disabled Persons Organisation (DPO). I also co – facilitate on the Disability Studies Certificate at Maynooth University.

For me, Independent Living is when all the pieces of the “Independent Living Jig saw” fit together which some include Housing, Transport, Employment and Personal Assistance Services (PAS). Independent Living Movement Ireland (ILMI) are a campaigning, national cross impairment disabled person’s organisation or DPO as defined under the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD).

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Digital Visual Arts and Cognitive Neuroscience: Keeping the “me” in memory research

Social Technologies

Author: Dr Richard Roche, Dept of Psychology

Maynooth Illuminations exhibition space - Maynooth University
Maynooth Illuminations exhibition space – Maynooth University

Memory is arguably the most important cognitive function we possess, and its loss leaves a profound gap in many aspects of life. The progressive deterioration of brain structures responsible for memory – so common in old age, and even more so in degenerative conditions – robs people of so much: their most treasured moments, their ability to recognise friends and family, their independence, their confidence, their very sense of self. While pharmaceutical remedies for memory decline remain unsuccessful, research with lifestyle-based, non-pharmacological interventions may offer promising avenues for the future. Among these approaches in Reminiscence Therapy, whereby older people – often in group settings – meet regularly to actively recall and share memories from earlier life epochs, with the process often steered by a moderator. At one time, older adults reminiscing was considered a worrying sign, suggesting some form of regression, but since Butler’s seminal paper in 1961, the benefits of reminiscence – resolving affairs, giving meaning to life – have been well studied, leading to the adoption of Reminiscence Therapy in many care homes and hospitals.

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