Can Lifestyle Changes Inform New Human-Rights Based Approaches to Dementia Management, Treatment and Care?

Research Stream: Social Lives

Authors: Maria Gialama, PhD scholar and Graduate Teaching Assistant at Maynooth University’s Department of Psychology, Joanne McVeigh, Assistant Professor of Psychology, Maynooth University, Mac MacLachlan, Professor of Psychology & Social Inclusion, and Co-Director of the ALL Institute, Maynooth University and Georgios Hadjigeorgiou, Professor of Neurology, Medical School, University of Cyprus.

Dementia is an extremely common, progressive neurodegenerative condition which affects almost 55 million people worldwide. Every year, almost 10 million new cases are reported (WHO, 2024). Today, dementia is the seventh leading cause of death and a major cause of disability and dependency among the elderly. Unsurprisingly, the World Health Organization (WHO, 2019), declared dementia a public health priority, not only because of its global prevalence, but also due to its significant impact on families and health service providers. In Ireland, there are 55,000 ‘people living with dementia’ (PwD) and almost 60,000 people who provide care for someone diagnosed with the condition. Long before COVID-19, dementia emerged as a pandemic due to ageing populations and the relationship between age and the incidence of the condition (Fox & Petersen, 2013).

Competition Law Enforcement in the EU and Access to Health Technologies: An Overview of the EU 2024 Competition Law Report on Pharmaceuticals and Medical Technologies – Update on Competition Enforcement in the Pharmaceutical Sector (2018-2022)

Author: Dr. Opeyemi Kolawole Post-doctoral Researcher, PatentsInHumans Project, ALL Insittute and Department of Law and Crimonology

Research Stream: Social Technologies

Competition law is pivotal in maintaining market equilibrium and safeguarding consumer welfare. In the European Union, competition law principles are enshrined in Articles 101 and 102 of the Treaty on the Functioning of the European Union (TFEU). While Article 101 prohibits the formation and enforcement of agreements that have the object or effect of distorting competition, Article 102 prevents a dominant firm from abusing its dominant market position.

Competition in healthcare services is critical to providing access to affordable medicines and medical technologies, ensuring expensive pharmaceutical and medical technologies do not significantly strain public and private finances. With their proactive enforcement of competition rules, the EU Commission and the 27 National Competition Authorities (NCAs) have been instrumental in this regard. In the recent Report on Competition Enforcement in the Pharmaceutical Sector, published in January 2024, the EU Commission provides an overview of how EU competition rules have been enforced to prevent and rectify business practices which may harm competition in the common market and consumer welfare. This article examines some of the key decisions reached by the Commission and some of the NCAs and highlights potential improvement opportunities to maximise consumer welfare.

‘Lived Fiction’ Goes on Stage: Reflecting on a Major Milestone for the DANCING Project and the Collaboration with Stopgap

Research Stream: Stories / Lived Experiences

Author: Eva Krolla Research Assistant DANCING, in dialogue with Professor Delia Ferri and Lucy Glover, Executive Producer at Stopgap Dance Company

Image on the left shows Eva Krolla smiling and wearing white, image in the centre shows Professor Delia Ferri smiling and wearing black, image on the right shows Lucy Glover smiling and wearing navy.

On 11^th April, the contemporary dance piece ‘Lived Fiction’ premiered at Dublin’s Lir Academy Theatre in collaboration with Project Arts Centre (PAC). The piece was commissioned by DANCING, a European Research Council (ERC) funded academic research project based at the School of Law and Criminology of Maynooth University. It was created by Stopgap Dance Company’s Deaf, Disabled, neurodivergent and non-disabled creatives under the lead of co-artistic director Lucy Bennett. Stopgap are a global leader of disability access in dance and are based in the UK. ‘Lived Fiction’ artistically embeds accessibility for dancers and audiences through an integrated creative access approach.

The ERC funded PatentsInHumans Project – Year One Project Report And Reflections!

Research Stream: Social Technologies

Authors: Professor Aisling McMahon, Principal Investigator (ERC PatentsInHumans Project) & Sinéad Masterson, Project Manager (ERC PatentsInHumans Project)

It is hard to believe that the PatentsInHumans Project has passed the one-year point having commenced in November 2022! And what a quick and busy year it was! Alongside recently publishing our Year 1 Report which gave us pause to reflect on the project, we were delighted to write this article for the IDEAS in ALL Blog to mark the first year of the project and to provide a snapshot of the research and other activities the PatentsInHumans team have undertaken during this time.

The PatentsInHumans Project:

What Role is There for Artificial Intelligence in the Assessment of Neurodiversity?

Research Stream: Social Technologies

Author: Emily McConway, Undergraduate Intern in Psychology, Maynooth University and Mac MacLachlan, Professor of Psychology & Social Inclusion, and Co-Director of the ALL Institute, Maynooth University

Early assessment and intervention are vital in facilitating positive developmental and behavioural outcomes for children with neurodevelopmental conditions. Early intervention has a positive long-term effect on both autistic children and their caregivers. The current process of assessing the needs of children with possible autistic traits focuses on the use of behavioural clinical diagnostic instruments such as Autism Diagnostic Observation Schedule (ADOS) and Autism Diagnostic Interview-Revised (ADI-R). Both instruments require direct clinician-to-child observation and can take hours to administer and score. In many countries, long waiting lists, coupled with social, economic and geographic barriers hinders timely assessment of neurodiverse children. The ALL Institute is interested in pragmatic ways to streamline access to services, including assessing a person’s needs for services and supports.

Equality in a Digital Future? Ensuring Access to Assistive Technology in Third-Level Education

Research Stream: Social Technologies

Author: Matthew McKenna, PhD Researcher at Maynooth University’s Assisting Living and Learning (ALL) Institute , Research Funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT)

Supporting universal and consistent access to Assistive Technology (AT) at third-level education within Higher Education Institutions (HEIs) in Ireland represents a critical milestone to achieving equal opportunities for persons with disabilities.

Creating an Accessible Survey for the DANCING Project

Research Stream: Social Lives

Author: Hilary Hooks, Project Manager, Protecting the Right to Culture of Persons with Disabilities and Enhancing Cultural Diversity in EU Law: Exploring New Paths (DANCING) Project

The DANCING project, led by Principal Investigator (PI) Professor Delia Ferri, aims to investigate participation in culture by persons with disabilities. Access is a critical issue in all areas of life for people with disabilities. This includes the area of culture, and concerns people with disabilities who are (or who wish to be) involved at all levels, including as artists, arts-professionals, and audiences.

GoGreenRoutes: Accessible and Sustainable Futures

Authors: Kalyn Potter, Project Manager GoGreenRoutes, Department of Psychology and ALL Institute, and Maria Fernadez de Osso Fuentes, PhD Researcher All Institute and Department of Business

Research Stream: Symposium

In January 2021, the Horizon 2020 funded project, GoGreenRoutes, moved to Maynooth University under the coordination of Dr. Tadhg MacIntyre. As a large-scale multinational project at the nexus of human health, climate and equity, GoGreenRoutes is particularly aligned with ALL’s mission. We aim to address complex issues of how the environment impacts human health and sustainability, especially for disadvantaged groups and minority populations who typically have less access to urban green space.

Developing the Campus as a Healthy Environment: The MU Healthy Campus Steering Group

Authors: Dr. Ronan Foley (Interim Chair) and Orlagh Eustace (MU Health Promotion Officer), Maynooth University and ALL Institute

Research Stream: Symposium

Following the national launch of the Healthy Campus Charter and Framework in 2021, Maynooth University committed to supporting the Charter and implementing the Framework across our university campus.

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Research Stream: Social Lives

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