Labyrinths of the United Nations Conference of State Parties: How not to get lost

Social Structures

Author: Iryna Tekuchova, PhD Researcher, Department of Law, Maynooth University

Iryna Tekuchova taking a selfie at the UN COSP 15
Iryna Tekuchova

The health application on my phone notified me that, within the three days that comprised the 15th session of the UN Conference of State Parties to the CRPD (the UN COSP 15), I walked 18 km. And these 18 km, 23687 steps, were made only in the New York UN Headquarters: a 39-floor building located on 17 acres of land, with the General Assembly Hall capable of accommodating 1158 country delegates and hundreds of NGO representatives. So, what is the UN COSP, and what is behind its agenda that turns you into an ‘athlete’?

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SFI ADVANCE CRT: Interdisciplinary Research for a Connected Society that Promotes Independent Living and the Rights of the Individual

Social Structures

Author: Matthew McKenna, PhD Researcher at Maynooth University’s Assisting Living and Learning Institute (ALL) Institute, Research Funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT)

Matthew McKenna Profile Picture
Matthew McKenna

The Science Foundation of Ireland (SFI) Centre for Research and Training in Advanced Networks for Sustainable Societies (ADVANCE CRT) is a multidisciplinary research project focused on ‘Future Networks and the Internet of Things (IoT) with applications in independent and sustainable living’. ADVANCE CRT aims to fund and train 120 PhD students in four annual cohorts in five partner universities, including Maynooth University, across a multitude of academic disciplines and through engagement and cooperation with industry partners. In the words of the ADVANCE CRT:

‘Our vision is to train the next generation of researchers who will seek solutions to the technical and societal challenges of global hyper-connectivity between large numbers of People and Things’.

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First Time Conference: DANCING to Italy

Stories/Lived Experiences

Author: Eva Krolla is a Research Assistant in the ERC-funded DANCING project at the School of Law and Criminology and Assisting Living and Learning (ALL) Institute, Maynooth University.

DANCING Project Team Maynooth (Left to Right) Ann Leahy, Eva Krolla, Iryna Tekuchova, Hilary Hooks, Delia Ferri and Lea Urzel
DANCING Project Team, Maynooth University

5.45 am, the alarm is ringing, as scheduled. A little early, even for people like me who like to think of themselves as ‘morning people’. And it is true, I have little difficultly getting up. But it is accompanied by a subtle nervousness – do I have everything? Did I pack everything we need, better double-check that the USB key works. Done! I quickly brew some coffee and take a deep breath. Phone, keys, passport, boarding pass, laptop, USB key (double-check that one) and hand luggage – got everything. As the taxi slowly approaches the front door, I quietly leave the apartment, barely 6.30 in the morning. Subtle nervousness turning into excitement… This is my first conference with the DANCING team!

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Access to Assistive Technology (AT); why we should not prioritise function over form and adopt a holistic approach

Social Lives

Author: Mohamed Maalim – PhD Researcher at the ALL Institute, Department of Psychology, Maynooth University, and Senior Occupational Therapist at Stewartscare

Mohamed Maalim
Mohamed Maalim

Persons with disabilities, people with functional limitations resulting from chronic conditions, and older adults often experience physical, psychological, and social challenges restricting their participation in society. Moreover, individuals with disabilities often experience direct and indirect societal discrimination, as mentioned in the report Disability and Discrimination in Ireland. The right of the person with disabilities to the full and equal enjoyment of all human rights and fundamental freedoms, as well as to the protection and promotion of their inherent dignity and respect, is enshrined in Article 1 (Purpose) of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD)

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Walk Me Back: Reminiscence and Physical Activity for Better Memory

Social Lives

Authors: Cassandra Dinius, Carmen Pocknell, Richard Roche, Department of Psychology & Assisting Living and Learning (ALL) Institute, Maynooth University

Left to Right Carmen Pocknell, Richard Roche, Cassandra Dinius
L to R Carmen Pocknell, Richard Roche, Cassandra Dinius

Remember those life moments that you think are unforgettable and yet, are already blurred one year later. Our precious memories are fragile and can evaporate as rapidly as a blink of an eye. Memory loss has taken so many dreams away.

Keeping our brains active – especially our memories – can be life changing, and is comparable to revisiting our favourite, faded old book: by reading it again and again, we keep the moments alive…

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Bringing the Conversation on Digital Accessibility into the Mainstream

Social Lives

Author: Emma Smith, Assisting Living and Learning (ALL) Institute Member and Post-Doctoral Researcher; recipient of the prestigious Marie Sklowdowska Curie Actions Individual Fellowship

Emma Smith Profile Pic
Emma Smith

Our lives are increasingly digital. From the moment we wake up in the morning, to before we go to bed, we are connected. A recent report from the BBC suggests people are spending, on average, a third of their waking hours on mobile apps.  Even in lower income contexts, 30-50% of people have been reported to be connected to mobile ‘smart’ devices. Those of us living in higher income contexts, like Ireland, are also connected in other ways – through smart watches and health tracking devices like the Oura ring, smart homes, our cars, and of course our computers. The reality is that it is becoming more and more difficult to escape a digital world.

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Will you be RADICAL?

 A call to Action for Revision of the Disability Act 2005

Social Structures

Authors: Mac MacLachlan, Delia Ferri, Delma Byrne and Anastasia Campbell – Assisting Living and Learning (ALL) Institute, Maynooth University

Black Background. White font large letters ‘Have your Say’ underneath subheading ‘Be RADICAL’ underneath text reads ‘Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation’, the R, A, D, I, C, A, and L are bolded and underlined.
Be RADICAL: Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation

By asking you to be RADICAL we are asking you to join us in calling for the Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation.

We want to harness both new thinking and dissatisfaction concerning the Disability Act (2005), by constructively focusing on ideas for why and how the Act should and could be improved, now!  

Our aim is to encourage legislators, and particularly the Minister for Disability, Anne Rabbitte, to begin the long-overdue process of legislative reform in disability.  This year revision of the Education for Persons with Special Educational Needs, (EPSEN) Act (2004), was announced. Revision of EPSEN, without revision of its ‘sister Act’, the Disability Act (2005), with which it is closely intertwined, makes little sense.  Furthermore, both of these acts predate the United Nations Convention on the Rights of Persons with Disability (CRPD) which, since our ratification in 2018 (we were the last country in  Europe to ratify it), means that we are now obliged to comply with and deliver on the Convention. 

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ALL and the Dept. of Adult and Community Education Addiction/Psychology Seminar Growing Space: Recovery, Education and Capability

Stories/Lived Experiences

Author: Deirdre Delaney, accredited psychotherapist (M.I.A.H.I.P, MCPI) and a tutor with the department of adult and community education in Maynooth University.

Deirdre Delaney Profile Picture
Deirdre Delaney

The Adult Education programme run by Maynooth University reaches all parts of Ireland. Every year our Addiction and Psychology certificate and diploma programmes gather from all around the country to share a day of presentations and workshops on the Maynooth campus. It is a very important day in our academic calendar but of course over the last two years we were unable to gather. Though an online day was organised, the pandemic never felt more real. Students and tutors alike missed the opportunity to be together with others on campus. For many students it will be their first time to set foot on a university campus. I always hope that it won’t be their last time.  

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“Human rights crisis within a crisis” – Intersectional challenges for persons with disabilities in the war in Ukraine

Social Structures

Author: Rebecca Daniel – PHD Student, Assisting Living and Learning (ALL) Institute, Department of Psychology, Maynooth University

Rebecca Daniel
Rebecca Daniel

The situation of persons with disabilities during the current war in Ukraine has been repeatedly described as a “crisis within a crisis” during the past number of months. This blog post aims to reflect on the multiple forms of discrimination that persons with disabilities face in times of conflict.

Approximately 15% of the worldwide population has a disability. The United Nations Office for the Coordination of Humanitarian Affairs (OCHA) estimated that 13% of people in Ukraine, in need of humanitarian assistance in 2021, had a disability. In situations of war and conflict, these numbers can even increase, since many disabilities are caused or worsened by war (e.g. through war injuries, a lack of health care provisions, or post-traumatic stress disorders). Given this, it can be estimated that the numbers of persons with disabilities directly or indirectly affected by the war in Ukraine are even higher than those estimated above.

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Platforms under control? An expert opinion on the copyright aspects of the Digital Services Act

Social Structures

Author: Péter Mezei, Associate Professor of Law, University of Szeged, Faculty of Law and Political Sciences; adjunct professor (dosentti), University of Turku, Faculty of Law

Péter Mezei Profile Picture
Péter Mezei

Most of the European Union (EU) legislation on platforms was introduced in a period that we currently call “web 1.0”. During the early years of the internet, websites offered “read only” experience, rather than interactivity and user engagement. The early legislative acts in the USA and the EU have contributed to the emergence of brand-new business models. The platformisation – based on the safe harbours granted for (certain) service providers – has generated a brand new (“read/write”) internet culture, something we refer to as “web 2.0”. For a while, social media’s contribution to modern society was hailed as the new democratisation of life, but those sentiments have since then gone, partially due to platforms’ excessive content moderation practices.

Web 2.0 – coupled with rogue websites’ contribution to illegal end-user activities – have sparked criticism on a global scale. It took many years in Europe to come up with the necessary solutions to mitigate the negative consequences of the platform age. One of the magic keywords for these reforms was the so-called “value gap”, that is, the claim that platforms’ benefits from end-users’ activities is disproportionately greater than the fees they pay to rights holders. Furthermore, as data has become the “oil of our age”, an urgent need has arisen to regulate the collection, management and utility of information.

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