Nothing Without Us: Considering Public Patient Involvement in Research

Social Technologies

Author:  Joan Alaboson is a Doctoral Researcher in the Department of Psychology, Maynooth University. She has a background in medicine and an MSc in Public Health with broad research interests in non-communicable diseases, particularly mental health, social determinants of health and quality of life.

Joan Alaboson
Joan Alaboson

‘What can be done to make settling into the PhD, better?’ asked Dirk, the Director of the Science Foundation Ireland’s Centre for Research Training in Advance Networks for Sustainable Societies (ADVANCE CRT) at a meeting with funded PhD students. Being the only one in the room that had recently commenced my studies, at that moment I felt there was a deep sense of concern for my well-being by ‘management’. It was the first of such fora I’d attended, and I left with a lasting impression of being in relatable company during my studies.

True inclusion, however, could often be elusive, despite best efforts. There is hardly any organization, entity or group that does not seek to represent the interests of those concerned. It may be expressed in a vision, mission, goals, or activities. Yet, many can be left out. Sometimes, it is a fault inherent in group development, when diverse people are not present to consciously bring unique perspectives to the fore. Similarly, it may result from work protocols or culture that fail to recognize and may neglect, systematically, the views and or needs of diverse people.

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Blog 3: Systems Thinking in Research: Considering Interrelationships in Research Through Rich Pictures

Stories/Lived Experiences

Authors: Bob Williams, Systems Thinking Practitioner, Trainer and Evaluator – ConsultantJoan O’Donnell, Systems Thinking Trainer and PhD Researcher at Maynooth University’s Assisting Living and Learning Institute, Research Funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT)

1st year ADVANCE CRT Student Induction, Cork January 20
A number of people are standing in a circle, one of them is speaking.
1st year ADVANCE CRT Student Induction, Cork January 2023

Let’s start with a true story. It follows on from our last blog about focus and scope. But it highlights our tendency to start with focusing in on the subject of our research–with boundary setting­–rather than considering the wider scope, especially when faced with ‘a problem’ that we hope our research will address. Stating that something is a ‘problem’ is a form of boundary setting, as we will see.

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Blog 2: Getting to the heart of designing research using systems thinking

Stories/Lived Experience

Authors: Bob Williams, Systems Thinking Practitioner, Trainer and Evaluator – Consultant. Joan O’Donnell, Systems Thinking Trainer and PhD Researcher at Maynooth University’s Assisting Living and Learning Institute, Research Funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT)

Joan O Donnell Profile Picture and Bob Williams pictured with Monkeys on his head
Joan O Donnell & Bob Williams

In this blog, we will discuss topics covered during ADVANCE CRT’s Summer School on Systems Thinking at Maynooth University in June 2022. See here for the first blog. It can be read as a discourse around designing research, and you are invited to consider how the questions posed offer an inflection point for your research.

Nobody would deny that research is a complex business. One of the most complex decisions is deciding the focus of your research among the vast range of possibilities that lie within its scope. This blog explores how understanding and addressing three different kinds of complexity can help with that tricky decision. Ontological complexity helps you address the reality you are dealing with; cognitive complexity helps you understand how different people make sense of that reality and praxis complexity helps you decide which parts of ontological and cognitive complexities ought to be inside and outside of your focus.

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Blog 1: A feast of new ideas: Systems Thinking in research

Stories/Lived Experiences

Authors: Joan O’Donnell, Systems Thinking Trainer and PhD Researcher at Maynooth University’s Assisting Living and Learning (ALL) Institute, research funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT) and Bob Williams, Systems Thinking Practitioner, Trainer and Evaluator – Consultant

A picture of Joan O'Donnell, wearing green, smiling, in the brightly lit conference room with a closed bar counter in the background with shutters down, at the Glenroyal Hotel Maynooth.
Joan O Donnell

This blog is the first of a series of blogpost contributions outlining basic Systems Thinking concepts presented at the ADVANCE CRT Summer School that we helped to design in June 2022, held in Maynooth.

‘The Systems Thinking summer school opened up little doors in my mind to paths that had been unexplored previously. It’s like an added tool to my repertoire and if I get back into old ways of thinking and get stuck, I remind myself of that door. It makes exploring topics more exciting also because it’s more of an adventure with this way of thinking’. Ashley Sheil, PhD Scholar, Maynooth University.

The ADVANCE CRT Summer School focusing on Systems Thinking marked the largest and most ambitious event of the Science Foundation of Ireland PhD programme to date. It brought over 60 students and supervisors together for four days in a memorable event that was as much a celebration of being together in physical space as an opportunity to delve deeply into the richness that Systems Thinking offers research.

This introductory blog gives an overview of Systems Thinking and a sense of its importance for transdisciplinary research. It also outlines some of the topics that students experienced during that week.

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SFI ADVANCE CRT: Interdisciplinary Research for a Connected Society that Promotes Independent Living and the Rights of the Individual

Social Structures

Author: Matthew McKenna, PhD Researcher at Maynooth University’s Assisting Living and Learning Institute (ALL) Institute, Research Funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT)

Matthew McKenna Profile Picture
Matthew McKenna

The Science Foundation of Ireland (SFI) Centre for Research and Training in Advanced Networks for Sustainable Societies (ADVANCE CRT) is a multidisciplinary research project focused on ‘Future Networks and the Internet of Things (IoT) with applications in independent and sustainable living’. ADVANCE CRT aims to fund and train 120 PhD students in four annual cohorts in five partner universities, including Maynooth University, across a multitude of academic disciplines and through engagement and cooperation with industry partners. In the words of the ADVANCE CRT:

‘Our vision is to train the next generation of researchers who will seek solutions to the technical and societal challenges of global hyper-connectivity between large numbers of People and Things’.

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A Digital Bounce for ALL?

Click here for Audio Version

Authors: Deirdre Desmond, Delia Ferri and Mac MacLachlan; ALL Institute Co-Directors

Picture of the three ALL Institute Co-Directors in front of a white back drop. From left to right: Deirdre Desmond, Mac MacLachlan, Delia Ferri
Deirdre Desmond, Mac MacLachlan and Delia Ferri, ALL Institute Co-Directors

“Life is not a series of gig lamps symmetrically arranged; life is a luminous halo, a semi-transparent envelope surrounding us from the beginning of consciousness to the end” Virginia Wolf, ‘Modern Fiction’, 1921.

2020 was certainly a difficult year for many of us, both on personal and work levels, and, despite these challenges, it is noteworthy that the work of the ALL Institute has not only proceeded, but also the commencement of several research projects ensure that we will continue to contribute in many respects to the building of a fairer society. In the past three years, and more so in 2020, we have endeavoured to reach out to different communities and stakeholders at the local, European and global levels. We also launched this blog on the 3rd December 2020, a particularly significant date, the International Day of Persons with Disabilities, to signal our commitment towards inclusion and equality.

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