Adaptive Fashion: An Instrument to Enhance Independent Living and Self-Confidence of Persons with Physical Disabilities

Social Structures

Author: Francesca Albi, J.D. Candidate – Università degli Studi di Verona (Italy)

Francesca Albi Profile Picture
Francesca Albi Profile Picture

Accessibility is one of the general principles embodied in the United Nations Convention on the Rights of Persons with Disabilities (CRPD) and it is explicitly affirmed by Article 3 (f), Article 9 and other provisions of the Convention. Accessibility must be understood as “the right to use goods, services and facilities available to the public without discrimination, and obtain an equal benefit from them” (Broderick and Ferri, 2019, p. 140). Accordingly, accessibility is strictly linked to the concept of “universal design”, which is an expression of the paradigm-shift embraced by the CRPD (Cera, 2017, pp. 107-118) and which is defined in Article 2 of the CRPD as the “design of products, environments, programmes and services to be usable by all people, to the greatest extent possible, without the need for adaptation or specialized design”.

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A Matter of Trust: Accepting Artificial Intelligence and Robotics-Aided Care to Enhance Independent Living for Persons with Disabilities

Social Structures

Author: Matthew McKenna, PhD Researcher at Maynooth University’s Assisting Living and Learning Institute (ALL Institute)

Matthew McKenna Profile Picture
Matthew McKenna

The European Union (EU) is arguably emerging as a global leader in the ethical and human rights-based regulation and deployment of Artificial Intelligence (AI) in healthcare, domestic and wider societal settings in the twenty-first century. On the 8th of April 2019, the EU High-Level Expert Group on AI presented ‘Ethics Guidelines for Trustworthy Artificial Intelligence’. This followed the publication of the guidelines’ first draft in December 2018 on which more than five hundred comments were received through an open consultation.

According to the Guidelines, trustworthy AI should be:

(1) Lawful – Respecting all applicable laws and regulations

(2) Ethical – Respecting ethical principles and values

(3) Robust – Both from a technical perspective while taking into account its social environment

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My Placement Experience with ALL Institute

Stories/Lived Experience

Author:  Kimberly Wright, Postgraduate LLM student Global Legal Studies

Profile Picture Kimberly Wright
Kimberly Wright

One of the main reasons I decided to pursue a Master’s Degree in Global Legal Studies after completing my Bachelor’s in Law was to obtain a better understanding of the global legal system in the hopes of one day working for an international organization, as well as to apply for a placement to gain practical experience in a reputable organization. From February to May of this year, I had the privilege of interning with Assisting Living and Learning (ALL) Institute.

My first day with the ALL Institute I was incredibly nervous as I had no previous experience working in this field and it was completely different from what I was accustomed to. However, upon meeting the co-directors and their administrative lead for the first time, I was warmly welcomed and immediately put at ease.

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Digital Visual Arts and Cognitive Neuroscience: Keeping the “me” in memory research

Social Technologies

Author: Dr Richard Roche, Dept of Psychology

Maynooth Illuminations exhibition space - Maynooth University
Maynooth Illuminations exhibition space – Maynooth University

Memory is arguably the most important cognitive function we possess, and its loss leaves a profound gap in many aspects of life. The progressive deterioration of brain structures responsible for memory – so common in old age, and even more so in degenerative conditions – robs people of so much: their most treasured moments, their ability to recognise friends and family, their independence, their confidence, their very sense of self. While pharmaceutical remedies for memory decline remain unsuccessful, research with lifestyle-based, non-pharmacological interventions may offer promising avenues for the future. Among these approaches in Reminiscence Therapy, whereby older people – often in group settings – meet regularly to actively recall and share memories from earlier life epochs, with the process often steered by a moderator. At one time, older adults reminiscing was considered a worrying sign, suggesting some form of regression, but since Butler’s seminal paper in 1961, the benefits of reminiscence – resolving affairs, giving meaning to life – have been well studied, leading to the adoption of Reminiscence Therapy in many care homes and hospitals.

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Including Patients and the Public in Research

Stories/Lived Experience

Author: Jamie Howell; PhD researcher, Department of Psychology, Maynooth University

Animation, 6 people on a blue background 3 healthcare practitioners 2 elderly people 1 person in a wheelchair and a female.
BioMed Central-

In recent years, health researchers have begun to embrace the concept of patient and public involvement (PPI). Rather than conducting research on or for various populations, we have begun to move towards working with patients and the public by prioritizing their needs and concerns. This allows researchers to learn from those who have lived experience and can help them design research projects which are more beneficial to the population being researched.

I first heard of PPI during my MSc, when my supervisor, Dr Rebecca Maguire encouraged me to include aspects of PPI in my research. Dr Maguire has worked as both a researcher and as a patient advocate, and her expertise has been invaluable to my own research.

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Promoting Equal Participation and Eliminating Discrimination: Time to Change the Narrative.

Social Lives

Author: Mohamed Maalim – PhD Researcher, of the ALL Institute, Department of Psychology, Maynooth University

Blue Butterfly with Brown slate background. Zero Discrimination Day 01 March 2021 wording in top right hand corner

The Zero Discrimination day is celebrated annually on the 1st day of March, to reflect on our rich human diversity and the need for equal opportunity to enjoy fundamental human rights, and to fight against discrimination in all its forms and manifestations. This year, above all previous, the ongoing global COVID-19 Pandemic with all its disruptive nature and the misfortune it has brought and caused, has also offered humanity a glimpse of its ‘non-discrimination’ attribute. The advent of COVID-19 reinforced upon us that we are all equal as humans in our susceptibility, our fear and concern for self and others, and indeed in our hope of getting back to as ‘normal life’ as possible or whatever that ‘normal’ means. 

Additionally, with Covid-19, we have adopted a common enemy enforcing upon us an almost military-type operation to fight back. The nations of the world in an unprecedented fashion formed ‘NATO’ type alliances and collaborative networks with the ‘Big Tech’ and ‘Big Pharma’ in a concerted effort to develop digital contact tracing and tracking apps‘ and vaccines, respectively.  Individual governments assumed the role of commanding officers alongside senior health personnel, frontline healthcare workers, and other so called ‘essential’ workers as the foot soldiers of the operation, while the general public’s hearts and minds were won by calls to stay at home to suppress the virus. 

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ALL’s Contribution to the United Nations Sustainable Development Goals

Social Structures

Authors: Kimberly Wright, Postgraduate LLM student Global Legal Studies & Anastasia Campbell, Administrative Lead, ALL Institute

On the 20th of February, the United Nations World Day of Social Justice gives the world an opportunity to celebrate peace, social inclusion, and respect for human rights. Those values are at the core of the United Nations (UN) action, and, in particular, of the Sustainable Development Goals (UN SDGs), which were adopted by all UN Member States in 2015 as a universal call to action to end poverty, protect the planet and ensure that all people enjoy peace and prosperity by 2030. The UN SDGs consist of a total of 17 universal goals adopted by all 193 UN member states aimed at improving and ensuring a sustainable future for all. These goals include poverty, inequality, climate change, peace and justice among various other causes for concern. The Assisting Living and Learning (ALL) Institute’s mission is to ensure that all people around the world, particularly those who have been subject to marginalisation, achieve a good quality of life and full participation in society through the use of appropriate technologies and evidence-based policies and laws. Our research is dedicated to promoting human rights-based and person-centred systems to empower people and enhance social inclusion and involvement.

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A Digital Bounce for ALL?

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Authors: Deirdre Desmond, Delia Ferri and Mac MacLachlan; ALL Institute Co-Directors

Picture of the three ALL Institute Co-Directors in front of a white back drop. From left to right: Deirdre Desmond, Mac MacLachlan, Delia Ferri
Deirdre Desmond, Mac MacLachlan and Delia Ferri, ALL Institute Co-Directors

“Life is not a series of gig lamps symmetrically arranged; life is a luminous halo, a semi-transparent envelope surrounding us from the beginning of consciousness to the end” Virginia Wolf, ‘Modern Fiction’, 1921.

2020 was certainly a difficult year for many of us, both on personal and work levels, and, despite these challenges, it is noteworthy that the work of the ALL Institute has not only proceeded, but also the commencement of several research projects ensure that we will continue to contribute in many respects to the building of a fairer society. In the past three years, and more so in 2020, we have endeavoured to reach out to different communities and stakeholders at the local, European and global levels. We also launched this blog on the 3rd December 2020, a particularly significant date, the International Day of Persons with Disabilities, to signal our commitment towards inclusion and equality.

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The Rights of Persons with Disabilities in the EU Charter of Fundamental Rights: Some Reflections on the 20th Anniversary of the Charter

Social Structures

Author Bio: Neža Šubic, Postdoctoral Researcher, DANCING Project, ALL Institute, Department of Law, Maynooth University

Neža Šubic profile picture

The Charter of Fundamental Rights of the European Union (the Charter) celebrates its 20th anniversary this month. It was proclaimed solemnly by the European Parliament, the Council of the European Union and the European Commission on 7 December 2000. Though not formally binding when it was signed, it became legally binding with the Treaty of Lisbon in 2009.

The Charter is the European Union’s bill of rights. It contains a comprehensive set of fundamental rights, ranging from civil and political rights to social and economic rights.

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