Author: Iryna Tekuchova, PhD Researcher, Department of Law, Maynooth University.
Iryna Tekuchova
February 24th, I woke at 7am in rainy Ireland. It had to be a busy day: reading, researching, editing. I made myself a cup of coffee and turned off the “airplane mode” on my phone. Five missed calls from my mother, seven – from my sister, and twenty-five unread messages from my friends popped up on my screen. I did not even need to read them to understand what it was about.
Russia attacked Ukraine. The war has begun.
I will never use the “airplane mode” on my phone again.
Author: Eliona Gjecaj is an early-stage researcher in the DARE project (Disability Advocacy Research Europe) based at the University of Iceland. Her PhD research focuses on ‘Violence against Disabled Women: Access to Justice’ in Iceland and the UK.
Eliona Gjecaj
Today, on International Women’s Day, I would like to celebrate all the survivors of gender-based violence, especially disabled women, and encourage others to come forward and tell someone. Gender-based violence is not and should not be taboo. Much like the saying ‘talk the talk, walk the walk’, we must have the experience talk. We must access the justice walk.
Let’s first highlight that there are so many unheard experiences of gender-based violence of disabled women that we need to hear, to believe, to recognise as breaches of law, and thus, provide support and access to reporting and prosecuting such violence. Lack of disability-rights-based knowledge, awareness, and training should not be the defence, but rather acknowledged and addressed. Not just in Ireland, but in many countries across Europe.
Author: Dr Rebecca Maguire, Department of Psychology, Maynooth University
Rebecca Maguire
International Women’s Day is a great time to celebrate the numerous achievements of women across the world. However, it is also an important time to reflect on the struggles and inequalities that persist for many. Unfortunately, despite significant strides towards gender* equality in recent years, as a group, women remain disadvantaged in the world of work relative to their male counterparts. This includes the oft-cited gender pay gap – the difference in median earnings between men and women – that persists in many sectors. Academia is no exception to this, with a recent report from the HEA showing that, in 2020, men made up 73% of Professors in Ireland, compared to women who made up just 27%. This is despite the fact that women make up a greater proportion of early career researchers and lecturers in academia – an effect often referred to as the “leaky pipeline”.
Author: Dr Nicola Mountford, Assistant Professor, School of Business, Maynooth University
Nicola Mountford
Opening Doors is a collaborative, interdisciplinary, intersectoral and international learning experience for early career researchers in Open Science and Open Innovation – applicable to all academic disciplines. As the project to develop and pilot this learning experience draws to a close, I reflect on my own learning experience as one of the principal investigators within the consortium.
Opening Doors, is an EU-funded co-ordination action aimed to research and develop a learning experience and networking opportunity for early career researchers using open, online resources. Specifically, our proposal said that we would focus on open science and open innovation. The first time our consortium met – Maynooth University (MU),Aarhus University (Denmark), the National Training Fund (Czech Republic), and UCD (Lead) – we spent a surprising amount of time discussing what open science and open innovation meant to the various partners. Coming from the School of Business, I had a good sense of what was meant by open innovation – as Chesbrough put it, “a more distributed, more participatory, more decentralized approach to innovation”. When it came to defining open science, however, I struggled. Following the definition of open innovation, open science presumably indicated a more distributed, more participatory, more decentralized approach to science. But, when we speak of open innovation, we tend to see industry-based innovators reaching into academia and across the general public. Open science seemed to require that we academics return the favour.
Author: Ross Coleman is a Translator, Writer and Disability Rights Activist from Dublin
Ross Coleman
“Ours is essentially a tragic age, so we refuse to take it tragically”, thus opens D.H Lawrence’s famous novel Lady Chatterley’s Lover, published in 1928 in which a bored unfulfilled housewife embarks on an affair with the gardener on her husband’s estate. Clifford Chatterley, Lawrence informs us, is a cripple, badly injured from serving in the front. Since his injury, he has become cold and unfeeling, absorbed in books and his intellect, only going outside to toot along in his electric bathchair. When I first read the book a few years ago, I dismissed it as a bygone relic of an ableist age. And yet, despite that, I was forced to admit a single harrowing fact: nothing has really changed.
I require a Personal Assistant (hereafter referred to as a PA) in order to help with daily tasks that I cannot do myself: getting dressed, going to the bathroom, showering. At the moment, my parents provide this support and have been providing it since I was born. If I want to go out, I either have to go out with my parents or just not go to the bathroom. Neither of these are desirable solutions. I should not expect, neither do I want, my parents to accompany me to every social function, but nor can I just not go to the bathroom.
Author: Joan O’Donnell, Doctoral researcher with the Assisting Living and Learning (ALL) Institute, funded by ADVANCE CRT and the SFI. She lectures in the MSc programme in Systems Thinking In Practice with the Open University and is the author of the Employers for Change report referred to in this blog.
Joan O Donnell
Continuous advances in technology and Assistive Technology (AT) enhance the range of work that people can do outside the office environment, making working-from-home (WFH), hybrid or remote working a realistic option for many workers with disabilities. It may suit those seeking greater flexibility in their working day, allow for better management of disabling conditions at home or sidestep the need to negotiate public transport.
Disability and work poses a complex issue that persists despite broad recognition of the interrelationship between disability, poverty, education, housing in the Sustainable Development Goals (SDGs) and the UN Convention on the Rights of Persons with Disabilities (CRPD) Article 27, which commits to safeguarding and promoting the right for disabled people to work on par with others. While the Organisation for Economic Co-operation and Development (OECD) suggests there is a greater need to engage employers to build a better world of work for persons with disabilities, the ESRI finds that there is also a need to understand the experience of disabled people in work.
Authors: Dr Katriona O’Sullivan, Digital Skills Lecturer, ALL Institute, Maynooth University. Dr Serena Clarke, Post-Doctoral Researcher, ALL Institute, Maynooth University. Dr Holly Foley, Programme Manager, STEM Passport for Inclusion, ALL Institute Maynooth University.
When thinking about women’s participation in Science, Technology, Engineering and Math (STEM), we often use the leaky pipeline as an analogy. There are specific places where women ‘leak’ out. For example, in school, young girls who show an early interest in science careers have often changed their minds by the time they reach secondary school due to a lack of STEM subjects and STEM supports being offered to them. In college women who opt for STEM often change their minds before graduation. Those who do graduate with a STEM degree often leak out of the pipeline after graduation -opting for careers that are suitable to their family life. While others hit the glass ceiling when trying to progress into STEM leadership roles. In all cases, we see that women leak out of the STEM pipeline more than men do (Clark Blickenstaff, 2005). When considering the pipeline analogy, it is about time that we admitted as a society, especially on a day like today –International Women and Girl in STEM Day– that the STEM pipeline is well and truly broken– in fact, we need a whole new plumbing system… and we could probably do with a group of female scientists and engineers on hand to make sure it doesn’t break again.
Authors: Léa Urzel, PhD Researcher ERC Project DANCING, Assisting Living and Learning (ALL) Institute, Department of Law, Maynooth University and Matthew McKenna, PhD Researcher at Maynooth University’s ALL Institute, Research Funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT)
Léa Urzel & Matthew McKenna
Last Wednesday, 26 January 2022, the European Commission (the Commission) released a draft Declaration on Digital Rights and Principles for the Digital Decade (the Declaration) for the European Parliament and Council to discuss and eventually endorse. With this initiative, the Commission aims to provide a reference point for all involved in the European Union’s (EU) digital transformation and to guide policy makers as well as private actors working with new technologies.
Author: Iryna Tekuchova, PhD Researcher, Department of Law, Maynooth University.
Iryna Tekuchova
“Being a human rights treaty body member is highly rewarding,” states the UN Handbook for Human Rights Treaty Body Members. It also mentions that the member of the Committee on the Rights of Persons with Disabilities (the Committee) is expected to have “high moral character” and “recognized competence and experience in the field”. However, this document is silent about the fact that beyond these qualities and merits, the candidates to the Committee often have to face a rocky electoral path, which turns to be difficult for many. Being an expert in a field covered by the Convention on the Rights of Persons with Disabilities (the CRPD) and having “high moral character” is not enough to have a real chance to be elected.
In 2020, I had the unique opportunity to coordinate the election campaign of one of my former colleagues in the Ukrainian organization for people with disabilities “Fight For Right”, who stood as the Ukrainian candidate to the Committee in the seventh election cycle. Looking back at the nomination and election campaign paths, which we have done, I can identify some tendencies and systematic challenges of these processes relevant for the candidates and the countries. Even though each candidate’s experience is unique and varies from State to State, some points of concern, incidental for Ukraine, might resonate with other countries and, thus, be subject to further analyses. In this blogpost, I would like to highlight four issues that may directly or indirectly influence the efficiency of the whole election process to the Committee.
Authors: Kate Rochford, 3rd Year Undergraduate Intern, Department of Psychology, Maynooth University & Mac MacLachlan, Co-Director of the Assisting Living and Learning (ALL) Institute, Maynooth University and Clinical Lead for Disability Services, Irish Health Service (HSE).
This figure illustrates the concept of disciplinary capture whereby one way of thinking (represented by one single text here) determines how people think about an issue. Like a whirlwind, it can often powerfully funnel thinking, ignoring the range of ideas available within the group, which otherwise may provide useful alternatives or additions to proposed actions. Image by Kate Rochford
Introduction An interdisciplinary approach to research has become increasingly popular when dealing with different topics (Aboelela et al., 2007). Such an approach can offer a more comprehensive or holistic perspective and is most suited to addressing real-world complex issues (Repko et al., 2017). However, while interdisciplinary collaboration may be appealing in theory, it is often difficult in practice (Cummings and Kiesler, 2007). In that regard, we believe that the concept of ‘disciplinary capture’ can supplement an enhanced interdisciplinary approach. It can also help to transpose academic thinking into practice. Particularly, in relation to disability, and services for persons with disabilities, this concept can translate into more effective integration of services.
Disciplinary capture involves thinking about problems from only one perspective (Brister, 2016). Disciplinary capture can determine what sort of ideas, facts, interventions or causal explanations, are depicted as permissible. For instance, a disease-model approach to mental health may only accept pharmaceutical interventions as being legitimate for a range of mental health problems, while a more psychological, social or human rights approach may not accept this (MacLachlan et al, 2021). In this scenario, if proponents of the disease model are positioned in such a way that other professions are expected to be deferential towards them, then this is likely to inhibit truly interdisciplinary practice. Moreover, this can impede the empirical merit of such a position through the preclusion of an open discussion which would allow for full exploration of all the possible alternatives. The result may manifest in poorer decision-making processes and sub-optimal interventions.
