Will you be RADICAL?

 A call to Action for Revision of the Disability Act 2005

Social Structures

Authors: Mac MacLachlan, Delia Ferri, Delma Byrne and Anastasia Campbell – Assisting Living and Learning (ALL) Institute, Maynooth University

Black Background. White font large letters ‘Have your Say’ underneath subheading ‘Be RADICAL’ underneath text reads ‘Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation’, the R, A, D, I, C, A, and L are bolded and underlined.
Be RADICAL: Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation

By asking you to be RADICAL we are asking you to join us in calling for the Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation.

We want to harness both new thinking and dissatisfaction concerning the Disability Act (2005), by constructively focusing on ideas for why and how the Act should and could be improved, now!  

Our aim is to encourage legislators, and particularly the Minister for Disability, Anne Rabbitte, to begin the long-overdue process of legislative reform in disability.  This year revision of the Education for Persons with Special Educational Needs, (EPSEN) Act (2004), was announced. Revision of EPSEN, without revision of its ‘sister Act’, the Disability Act (2005), with which it is closely intertwined, makes little sense.  Furthermore, both of these acts predate the United Nations Convention on the Rights of Persons with Disability (CRPD) which, since our ratification in 2018 (we were the last country in  Europe to ratify it), means that we are now obliged to comply with and deliver on the Convention. 

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Judicial Review of Assessment of Need

Social Structures

Author: Mac MacLachlan, Co-Director of the Assisting Living and Learning (ALL) Institute, Professor of Psychology & Social Inclusion, Maynooth University and Clinical Lead for Disability Services, Irish Health Service (HSE)

Professor Mac MacLachlan Profile Picture
Mac MacLachlan

On the 11th March 2022, Justice Siobhan Phelan’s Judicial Review , was released which sought to address the grievances in two particular cases, and to interpret the intensions of the Disability Act (2005) regarding the Assessment of Need (AoN) process. I can make no comment on the particular cases, but I would rather comment on the broader issues touched upon in the decision and on Justice Phelan’s interpretation of the AoN process, while well intentioned and carefully considered, seems to me very problematic. While she refers to a related 2019 report from the ALL Institute on a closely related topic, the judgement will not help us address the challenges, which are certainly not unique to the Irish context.

The Standard Operating Procedure (SOP) for the AoN was introduced to have a standardised and shorter assessment time, allowing for services that assist children and parents to be provided more quickly.  It allowed for assessment continuing as part of routine clinical practice alongside services such as therapy, recognising that assessment is not a one-off event, and that people’s needs change over time.  The SOP also allowed for the situation where, should a preliminary assessment not be sufficient to identify the need for services, then a more detailed assessment would follow. This is a pragmatic approach, to maximise the impact of available resources, as the Health Service Executive (HSE) is compelled to do under section 7 of the Health Act (2004): resources should be used in the “most beneficial, effective and efficient manner”. 

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