Disability – Page 2 – Ideas in ALL

My First St. Patrick’s Day in Ireland, a Sharp Reminder of Moments Past Lived

Stories/Lived Experience

Author: Harry Chikasamba, PhD Researcher, Assisting Living and Learning (ALL) Institute, School of Law and Criminology, Maynooth University

Every experience is different. And my late grandpa told me, when I was a few days to my 20^th birthday, that ‘…in experience, we learn more about ourselves and others. You should be an ardent learner of life, through lived experiences.’ With that in mind, I became a learner of life. And everything fun, and beautiful.

17^th March 2023 brought about its own lessons, unique and memorable. Most importantly, the day took me down memory lane. For the Irish, and several others, one needs no sermon about this day. No! St. Patrick is well-known across cultures and races. He was, and remains, a core part of the Irish culture – and identity.

The Right to Health of Vulnerable and Marginalised People in Ireland

Social Structures

Author: Ollie Bartlett, Assistant Professor of Law, Assisting Living and Learning (ALL) Institute, School of Law and Criminology, Maynooth University

Ollie Bartlett

The world was clearly inadequately prepared to fight Covid-19. An important factor in this was the inadequacy of public health law frameworks at international, regional and national level. Political attention quickly turned to the creation of a new pandemic treaty and the revision of supranational rules concerning cross-border health threats, comparatively little attention has been placed upon the role that the right to health should have played in shaping Covid-19 policy, or what role it should play in the future development of public health policy.

I have written on this question in the Irish context, and concluded that the debate begun in 2019 on the need for a right to health in the Irish Constitution is worth returning to. A constitutional right to health would support clearer and more proportionate public health decision-making, and may facilitate more direct challenges to government policies that have unacceptable or inappropriate consequences for health outcomes.

‘Lived Fiction’ – First sharing of Inclusive Contemporary Dance Choreography within the DANCING Project

Social Lives

Authors: Ann Leahy, Post-doctoral Researcher, and Delia Ferri, Professor of Law, ERC Project DANCING, Assisting Living and Learning (ALL) Institute, School of Law and Criminology, Maynooth University

DANCING: Researching Disability and Diversity in Culture

The Project “Protecting the Right to Culture of Persons with Disabilities and Enhancing Cultural Diversity through European Union Law: Exploring New Paths (DANCING)”, based at the ALL Institute, reached an important milestone at the end of February 2023. The initial work on an inclusive and accessible piece of contemporary dance created by Lucy Bennett and Stopgap Dance Company for DANCING was performed in Dublin in front of an invited audience. The work will be fully ready next year, and we are already looking forward to the world premiere in Dublin in early 2024.

The image shows Stopgap Dance company during the choreography. The image shows dancers from different ethnical backgrounds some of whom on a wheelchair.

On 24^th February 2023, Stopgap shared their work-in-progress in a pre-staging fashion, and without costumes or lighting at DanceHouse in a dedicated event organised in collaboration with Dance Ireland. ‘Lived Fiction’ – the title of the work being created by Lucy Bennett and collaborators from Stopgap – is an original piece of choreography that is performed by a group of disabled and non-disabled dancers and endeavours to be accessible to all. Stopgap’s devising process is based on key inclusive methods that the company has collectively developed and is a living example of how society should and could be, valuing the richness that comes from diversity. Experimenting and working on accessibility for both dancers and audience allows for a deep understanding of what accessibility really means. However, this choreographic work is also meant to be a “tool for change” by raising awareness on inclusive cultural participation.

United Nations International Day of Education 24^th January 2023 – How the Russian Invasion of Ukraine Denies Access to Education for Millions of Ukrainians

Social Lives

Author: Matthew McKenna, PhD Researcher at Maynooth University’s Assisting Living and Learning Institute (ALL Institute), Research Funded through the Science Foundation of Ireland (SFI) Centre for Research Training in Advanced Networks for Sustainable Societies (ADVANCE CRT)

Matthew McKenna

The 24^th of January 2023 was the UN International Day of Education, whilst today, the 24^th of February, represents the first anniversary of the start of the full-scale Russian invasion of Ukraine that began a year ago as of this morning. This blogpost will address the unfathomable human rights crisis and tragedy that has befallen the Ukrainian people and the subsequent denial of access to education in wartime.

“Establishing lasting peace is the work of education; all politics can do is keep us out of war” – Dr Maria Montessori.

Montessori, was an Italian medical doctor who pioneered the philosophy of education through her work with children with disabilities, starting in 1896. She delivered the above quote in the late 1930s while working on the ‘Education for Peace’ movement during her exile from Italy due to the anti-fascist ethos of her humanitarian work. Montessori believed that a lasting unity between nations and peoples could be achieved when the education of children was underpinned with the values of international peace and humanitarianism. Moreover, her work has had a profound impact on the gradual educational reforms that have slowly enabled persons with disabilities to enter education and has helped, albeit over time, to reduce the traditionally punitive and penal institutional approach to children experiencing learning difficulties. And as we marked the UN International Day of Education a month ago on 24^th January 2023, her words sound just as relevant in today’s context as they were in the agitated pre-war climate of the late 1930s.

Is Social Sustainability the Forgotten Pillar of Sustainable Development?

Social Structures

Symposium

Author: Ruth O’Reilly, Senior Built Environment Design Advisor, Centre for Excellence in Universal Design, National Disability Authority

Here at the Centre for Excellence in Universal Design, we often use this quotation from the designer, Victor Papanek, to explain the focus of our work:

The only important thing about design is how it relates to people

Quotation 'The only important thing about design is how it relates to people' alongside an image of a book with the title Design for the Real Workld, by Victor Papanek. — Figure 1: Quotation from Design for the Real World by Victor Papenek (1971)

A key tenet of Universal Design is that good design works well for everyone. Sometimes however, it seems that social sustainability is the forgotten pillar of sustainable development. How can we persuade designers that taking a Universal Design approach – designing for all people, regardless of their age, size, ability or disability – is a key element of sustainable development?

The Impact of the Welfare State on the Working Lives of Disabled Artists: A New Research Project in ALL

Social Structures

Author: Philip Finn, Assisting Living and Learning (ALL) Institute and Post-Doctoral Researcher; recipient of the Irish Research Council Enterprise Partnership Fellowship.

Philip Finn

Life as an artist is precarious, even more so for disabled artists. First, disabled people face higher risks of poverty, social exclusion, and discrimination in their working lives and in public services. Secondly, for many in the arts sector income is sporadic, producing an insecurity necessitating on interim reliance on welfare payments to get by. This is felt acutely by disabled artists, often accessing crucial welfare payments and supports, who receive lower incomes from artistic employment, funding and grants. My research focuses on the role of welfare state payments and wider supports in facilitating or impeding disabled artists’ working lives.

The right to participate in the cultural life of the community is enshrined in a number of international documents, for example the Universal Declaration of Human Rights (Article 27) and the International Covenant on Economic Social and Cultural Rights (Article 15(1)(a)). In relation to the specific needs of people with disabilities Article 30 of the UN Convention on the Rights of Persons with Disabilities requires States to ‘enable persons with disabilities to have the opportunity to develop and utilize their creative, artistic and intellectual potential’. The Convention is central to elaborating a human rights model of disability underlining the recognition and participation of persons with disabilities in communal life. It necessitates accessibility as both consumers of culture as well as creators.

Will you be RADICAL?

A call to Action for Revision of the Disability Act 2005

Social Structures

Authors: Mac MacLachlan, Delia Ferri, Delma Byrne and Anastasia Campbell – Assisting Living and Learning (ALL) Institute, Maynooth University

Black Background. White font large letters ‘Have your Say’ underneath subheading ‘Be RADICAL’ underneath text reads ‘Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation’, the R, A, D, I, C, A, and L are bolded and underlined. — Be RADICAL: *Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation*

By asking you to be RADICAL we are asking you to join us in calling for the Revision of the Act on Disability in Ireland through Collaborative Action for new Legislation.

We want to harness both new thinking and dissatisfaction concerning the Disability Act (2005), by constructively focusing on ideas for why and how the Act should and could be improved, now!

Our aim is to encourage legislators, and particularly the Minister for Disability, Anne Rabbitte, to begin the long-overdue process of legislative reform in disability. This year revision of the Education for Persons with Special Educational Needs, (EPSEN) Act (2004), was announced. Revision of EPSEN, without revision of its ‘sister Act’, the Disability Act (2005), with which it is closely intertwined, makes little sense. Furthermore, both of these acts predate the United Nations Convention on the Rights of Persons with Disability (CRPD) which, since our ratification in 2018 (we were the last country in Europe to ratify it), means that we are now obliged to comply with and deliver on the Convention.

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